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I switched over to using a cane in late March. Physical therapy three times a week. The therapist tried explaining that I had a lot of nerve damage and that they’ll grow back, very slowly.
I can...

the surgery was February 21. My legs remain very weak and I still need to use a walker. I’m beginning to believe my leg weakness is more disease related. Are there tests for this?

I had major back surgery (a laminectomy) 50 years ago, when I was in my 20’s. I have lived a fully active life since then, riding bikes, bowling, lifting and working. Late this Summer I started to...

I’ve been on Rituxin since 2017. I was able to slowly eliminate prednisone from my daily routine.
Prior to diagnosis, I was treated for headaches, double vision, orbital pseudo tumors and sores...

I get two infusions a year. In Spring I get it at Cleveland Clinic, in the Fall at Loyola in Chicago. I’m pretty sure they both use all the same meds. After a Cleveland infusion I am typically awake...

That’s what I was thinking.

I had my latest Rituxin infusion at the end of September and I’m wondering when I should get a flu shot and the new Covid vaccine. Any suggestions?

I had an infusion of Rituxin last Thursday. I think I’ll have to wait till December to get a flu shot or the new Covid vaccine.

I’ll be getting an infusion at Loyola in Maywood, IL today. I’m still getting 500 units every six months. Rituxin has done miracles for me. I rarely think about Wegeners.

I sing, play ukulele and guitar. I also have the rc airplane hobby. These things help an awful lot.

Do you take Bactrim?

Hi Matt,
By the time that GPA was finally diagnosed, I had given up playing guitar, ukulele and singing. My radio control airplanes were gathering dust. I stopped running a company that I had...

Thanks for the update

My allergies kicked in 30 yeats ago, when I quit smoking. I guess the tar and nicotine were protecting my lungs.
we have a cat so I use generic Flonase twice a day and take generic Claritin twice a...

For my first visit to Cleveland Clinic, Dr. Villa Forte, I took copies of all my historic records from previous hospital visits. The good Doctor reviewed everything and had my biopsy tissues...

Masking, hand washing and social distance. They are not recommending drinking bleach…..

CDC urges people with weak immune systems to take extra precautions after Covid subvariants knock out Evusheld
The CDC urged people with weak immune systems to wear masks and practice social...

I use a nasal rinse every day. My nasal crusting and headaches usually restart around 2 months before my next RTX infusion.

Wishing health and happiness for each of you in 23

I've had Evusheld in March and again in September., shortly after RTX infusions. I am getting my booster and flu shots generally three months later. That has kept me relatively protected.

I got the Evusheld shots 6 1/2 months ago and again at the beginning of September. I believe they are an effective defense.

The eye doctor examined me yesterday and said it doesn’t look like a webs flair there. Allergies.

I had Evusheld months ago and am due to get another dose of it next week. I still get my vaccine boosters but I’m sure the Evusheld protected me much better.

I’ve been totally off of Prednisone for a couple years.

Before GPA was diagnosed, one of my earliest symptoms were eye problems. I described it as feeling like something was taking little bites out of the back of my eyeballs. I also started getting double...