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Sheena,
Thanks so much for sharing your Arava experience! You are the only one I heard from so must be it has not been prescribed for Wegies very often. Is the numbness in your toes improving? Hubby...

Hi Sangye,
They tried Imuran twice before Cellcept. Hubby spiked a high fever both times within about 5 hours and ended up in the hospital both times, so that is out. Mtx was prescribed and taken...

He has been on 3000 mg. since last July (before that for several years only 500mg daily, doing so well). Experienced another flare last night with swift and severe shoulder pain so now back up to...

Hubby's rheumy wants him to begin Leflunomide (Arava) next week. From what I can read, it is for Rheum. arthritis joint pain. I can't find anything in the information about suppressing the immune...

Excellent advice! Once the "very weird symptoms" started happening to hubbie, we wrote everything on a calendar for the two months (just because we were puzzled the symptoms all seemed so unrelated)....

I think it was a little better when he was in remission for several years! If he had a very good night of sleep during remission it was easier. We even took grand kids to Disney last year. It still...

Jules, I really feel your concern! Hubby and I were both in public education. Now retired, we work with kids at church and are soo conscious of stepping back from a sneeze, scrubbing hands extremely...

We live about 5 hours North of JH so see a rheumatologist in our area who has been in touch Dr. Seo. Hoping they consult again as th eJH appointment isn't until June.
Hubbie has noticed his hands...

Yes, and we have seen Dr. Seo (at JH ) twice. Hubbie was doing so very well for several years after going into remission, his rheumatologist debated taking him off even that low dose. Then last May,...

Hi Chris!

Yes, Acyclovir and several other anti viral meds along with the very familiar prednisone are part of the shingles treatment. We also read online, that a "sunburn gel" with Aloe and...

Hi Sangye!
Hubby has been seeing a Wegs specialist, as well as several consults with Johns Hopkins docs. thankfully! Cellcept worked well for several years, but since last Spring he keeps having...

The other half at our house, the one with the sense of humor, got it right away! thought it was great! And, brought the laugh we all need! Keep up the good work! Thanks! NT

Hammy 8241

Love your pic. Mostly truly appreciate your advice to "start breathing again!" Need to start laughing too! Tom is the one with the sense of humor. Need to get him on this as I tend to...

Hi!

So grateful to find this site. I will probably do most of the writing for hubbie who was diagnosed 4 years ago (shortly after retiring from a career in education) with numb foot and kidney...

My hubbie was on Cytoxin for a year, then put on 500 mg. Cellcept when a remission was determined. Did fine for almost three years. Last 8 months has kept having flares with extreme joint pain,...

After surviving and mostly recovering from horrible symptoms which will sound all too familiar (kidney involvement, numb foot and leg to knee, sinus, etc.) and taking Cytoxin for almost a year, my...