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Type: Posts; User: Beth Ann

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  1. Thread: News of Jack

    by Beth Ann
    Replies
    1,030
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    159,195

    I am absolutely devastated. I did not know Jack...

    I am absolutely devastated. I did not know Jack long but after my Mom was diagnosed I found this forum and Jack gave my family and I so much hope! My heart goes out to his family and you should be so...
  2. Thread: Flu Shot?

    by Beth Ann
    Replies
    4
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    3,148

    Flu Shot?

    Just wondering if you recommend getting the flu shot. This will be my mother's first winter after being diagnosed with Wegener's and neither her or anyone in our home have ever gotten it. I know...
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    She is not seeing a specialist but her...

    She is not seeing a specialist but her nephrologist is brilliant and is treating her for her wegener's. Her creatinine was at 6.2 when he diagnosed her and she is down to a 2.6 so we're hoping it...
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    What test results should we be asking for?

    My mother was diagnosed in April and she is being treated with ctx (oral) and pred. She has minimal sinus involvement but her kidneys were hit pretty hard. She went to the doctor last week and they...
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    So great to hear and best of luck!!..Gives me...

    So great to hear and best of luck!!..Gives me some hope with my mom!
  6. Thread: lithotripsy

    by Beth Ann
    Replies
    14
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    3,143

    so thrilled everything went well! My mom and I...

    so thrilled everything went well! My mom and I were thinking about you yesterday. Hope you have a quick recovery!!
  7. Thread: lithotripsy

    by Beth Ann
    Replies
    14
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    3,143

    Thanks everyone for your advice. Her doctors...

    Thanks everyone for your advice. Her doctors said that it needs to come out that "its not a stone its a boulder" =] and its only going to cause more damage if its in there. She already has a stent...
  8. Thread: lithotripsy

    by Beth Ann
    Replies
    14
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    3,143

    thanks for your reply. we don't really know to...

    thanks for your reply. we don't really know to much either other than they use some type of waves to shoot the stone and break it up into smaller pieces so it will pass. when she was admitted in...
  9. Thread: lithotripsy

    by Beth Ann
    Replies
    14
    Views
    3,143

    lithotripsy

    Hi,

    I was wondering if anyone here with kidney damage or without has had a lithotripsy done to blast a kidney stone. My mom has severe kidney involvement but also a massive kidney stone that the...
  10. Replies
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    She is tested once a week. She is on a blood...

    She is tested once a week. She is on a blood pressure pill and I think they are going to raise that because her pressure has been creeping up a little. Other than that its just the 30 mg pred,100mg...
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    Thanks for your reply. She was initially on...

    Thanks for your reply. She was initially on 1000mg iv the first 3 days and then they moved her to 40mg the last month which just changed to 30mg yesterday. I was just in shock because her numbers...
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    Kidney Involvement

    Hi,

    My mother was diagnosed with wegener's almost 2 months ago and her kidneys have been the most impacted. When admitted to the ER her creatinine was a 6.0 and it is now down to a 3.0 which is...
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    Thanks for the well wishes!..We're still in shock...

    Thanks for the well wishes!..We're still in shock but she should be coming home soon and we're heading into this full throttle. My mom had very little initial symptoms some sinus issues but they...
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    Hello, My mother was just diagnosed on...

    Hello,

    My mother was just diagnosed on thursday, she is 50 and we live in pennsylvania. If you don't mind me asking, what dosages are you currently on? Ive heard a lot of things about patients...
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    Shes been on 1000mg IV dosage of prednisone for...

    Shes been on 1000mg IV dosage of prednisone for the last 3 days and is starting oral tomorrow. Im not sure on how much. Do you know what is typical to start off with oral? Is ctx what they usually...
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    No were not seeing one on Monday she was just...

    No were not seeing one on Monday she was just diagnosed on thursday night and were just trying to get her atleast on some medication to get things moving here. I want her seen at JH as soon as...
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    Over medicating?

    So we're finally getting the ball rolling and my mother is being treated. She received 1,000mg of pred through IV the last 3 days and is going to begin starting oral form tomorrow (not sure how...
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    They started my mom on prednisone through IV just...

    They started my mom on prednisone through IV just about an hour ago. We didn't get to see the doctor that adventure starts tomorrow. With her kidneys and some sinus issues and a cough (no blood)...
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    Yeah I looked and Baltimore is probably the...

    Yeah I looked and Baltimore is probably the closest for us. They haven't done anything with her yet. We're lucky enough that she is feeling well and is up and moving around however her kidneys are...
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    Thank you for your reply and the well wishes We...

    Thank you for your reply and the well wishes We are in Northeastern Pennsylvania. She was just diagnosed yesterday and is being seen by a renal team but they haven't put her on anything yet and it...
  21. Replies
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    Just diagnosed

    Hi,

    My name is Brittany and my mother was diagnosed yesterday. I made this account for her so when she begins treatment and starts feeling better she can connect with all of you wonderful people...
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