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  1. Replies
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    Thanks Michelle but I believe I'm only a...

    Thanks Michelle but I believe I'm only a 'passenger' on this crazy ride. My toughest experiences have been when you have to make such quick decisions without the knowledge base to do so -- although...
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    THanks Drz, I hope she stays in remission...

    THanks Drz, I hope she stays in remission (confusing word with WG) with the understanding she is very lucky to get a second chance to follow the current treatment plan. She was on Imuran, perindopril...
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    In catching up with some of your posts regarding...

    In catching up with some of your posts regarding rtx I've got a better understanding of where the Rheumy is coming from. If it takes 2-3 months to work they are probably being proactive. Still would...
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    Thanks for the quick replies.... it is reassuring...

    Thanks for the quick replies.... it is reassuring that rtx can be another weapon. I just came back from the hospital and my how things change quickly when dealing with multiple doctors in multiple...
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    Rituximab - Is it really the answer?

    Hi Everyone! Hope today's norm is better than yesterdays! It has been a very long time since last posting even though I've been lurking and keeping up on news whenever I get a chance. Holly (aka...
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    Sorry to hear that Phil -- waiting is the worst!!...

    Sorry to hear that Phil -- waiting is the worst!! You take care in the meantime and I owe you a very, very extra large Tim's..... or a steak dinner my friend!
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    Hello Maria, sorry to hear your daughter has...

    Hello Maria, sorry to hear your daughter has kidney involvement -- it makes WG even more confusing. Holly's kidney function fell to 25-30% while in ER a year ago and her biopsy indicated significant...
  8. Thread: Update on Holly

    by Daggar
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    Holly is doing well and has made great strides in...

    Holly is doing well and has made great strides in her recovery. The Neph's are very surprised that she has recovered as much kidney function as she has so we're hoping she can at least maintain that...
  9. Thread: News of Jack

    by Daggar
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    159,218

    wow!!! I'm at a loss for words! I haven't been...

    wow!!! I'm at a loss for words! I haven't been checking in of late due to Holly doing well and progressing each and every month so this comes as a blow. Our best wishes to Jack's family.

    I had...
  10. Thread: Update on Holly

    by Daggar
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    Hello Eveyrone! It's been a while and I've...

    Hello Eveyrone! It's been a while and I've received a few p.m.'s about Holly's status. She has done the switch to Imuran -- only 50mg/day for the first two-three weeks to make sure there are no...
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    Thanks for posting that vdub! Hard to read at...

    Thanks for posting that vdub! Hard to read at times but a good indication of the "human spirit". WG (and the meds) is like taking the worst of "sickness, aging and adulthood" and throwing it at young...
  12. Hello Jeri -- sorry to hear about AJ's stomach...

    Hello Jeri -- sorry to hear about AJ's stomach problems. Holly hasn't made the switch yet due to the recent taper of pred -- the doctors wanted to have some time to evaluate that before messing with...
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    annoyed? no, just a little confused that's...

    annoyed? no, just a little confused that's all.... my apologies for invading your thread.
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    High intake of sugar? We're talking a single...

    High intake of sugar? We're talking a single serving of shake before she does her exercise in the a.m. Her blood sugar is normal..... before and after (tested). There is maybe a 1/4-1/2 cup of soy...
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    To each his own... i guess whatever works. ...

    To each his own... i guess whatever works.

    Holly's lab results have the dietician and doctors amazed that she is scoring high in all areas of nutrition -- as a vegetarian with low kidney function...
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    How about pastas Sangye? Can you eat the...

    How about pastas Sangye? Can you eat the multigrain pastas? We make up a large batch of sauce and then freeze in meal servings. Just cook up a pot of noodles thaw the sauce and you have a nice penne,...
  17. Thread: Update on Holly

    by Daggar
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    Thanks Nicole. Do the pred headaches go away...

    Thanks Nicole.

    Do the pred headaches go away with the taper or does that take more time?
  18. Thread: Update on Holly

    by Daggar
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    Don't get me wrong - I love your avatar... but it...

    Don't get me wrong - I love your avatar... but it may be time to use that "new book for understanding WG" that I just posted in "funny stuff".... this is very complicated!!
  19. Thread: Just Diagnosed

    by Daggar
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    Capes-a-ready -- Gonna have to dust it off - not...

    Capes-a-ready -- Gonna have to dust it off - not sure the "tights" still fit though! Picture Mr. Incredible from the cinematic gem "The Incredibles"!! You know the scene where he's hiding in his home...
  20. Thread: News of Jack

    by Daggar
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    Had a coccyx injury in the past and damn that is...

    Had a coccyx injury in the past and damn that is aggravating- one of the only times I used a chiropractor

    Could of regrown the tail in the time it took to heal.:wink1:
  21. Thread: Update on Holly

    by Daggar
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    Sangye, with all that you have had you've never...

    Sangye, with all that you have had you've never had sinus involvement?
  22. Thread: Just Diagnosed

    by Daggar
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    Seeing as Phil stole my "tough cookie" (lucky is...

    Seeing as Phil stole my "tough cookie" (lucky is wasn't chocolate chip or batman and I would have to go a few rounds:wink1:) ....

    Rini you're amazingly "resilient" so hang in there and this will...
  23. Thread: Update on Holly

    by Daggar
    Replies
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    6,614

    Update on Holly

    Holly had her last iv methylpred last Thursday but will continue to stay put at 10mg of oral/day.

    She was checked over carefully while receiving the treatment and they did discover a small sore...
  24. Thread: Funny Stuff

    by Daggar
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    A wee bit "dirty" but too good to pass by.... and...

    A wee bit "dirty" but too good to pass by.... and sooooo true!!

    LESSON FOR TODAY

    1259

    Sometimes, we try too hard to get to the greener grass.
    In the process, we end up in...
  25. Thread: Funny Stuff

    by Daggar
    Replies
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    can you see it now? The file takes a while to...

    can you see it now? The file takes a while to come up after posting for some reason?
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