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Type: Posts; User: robertlevigarrett

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    Re: Ongoing Sinus Issues

    A big thanks to all that shared their thoughts and experiences! I started a 10-day course of antibiotics yesterday. Hopefully this helps. If not, at least I'll be able to cross that off my list....
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    Re: Ongoing Sinus Issues

    The ANCA test was ordered by my neuro as part of a huge round of labs to rule out a bunch of stuff. When it came back positive, he told me I needed to follow up with my rheum to figure it out. I have...
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    Re: Ongoing Sinus Issues

    Yeah, I had an appointment with Dr. Villa Forte (who's awesome!), but I wasn't having any sinus issues at the time and nothing else was clinically indicating of Wegener's, so the road kind of ended...
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    Ongoing Sinus Issues

    Greetings--

    Hope everybody here is doing well. I first posted here back in December of 2019 after testing positive for C-ANCA/PR-3. At the time, my symptoms weren't screaming GPA and I didn't end...
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    Re: Trying to figure it all out.

    So, I'm in with Dr. Alexandra Villa Forte next week. Really happy about that.

    I was really in a funk yesterday, trying to figure out why my rheum was so quick to brush off the possibility of...
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    Re: Trying to figure it all out.

    Just heard back from my rheum and he doesn’t seem to think it’s vasculitis at all. Doesn’t want to do any further testing to eliminate either.

    I’m not comfortable with that considering the...
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    Re: Trying to figure it all out.

    I have considered it. This ANCA positivity stuff is a pretty recent development.

    Most of my specialists are down in Cincinnati at UC Health. I know that the Clinic is second to none in this field,...
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    Re: Trying to figure it all out.

    Hey Pete--

    Thanks for the reply. I hope so too! It's been a frustrating year. Just as I was becoming "okay" with the autoimmune hepatitis, this other stuff started popping up.

    It is an...
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    Trying to figure it all out.

    Greetings!

    39 year old male here. Diagnosed with Autoimmune Hepatitis about two years ago. Was on prednisone and azathioprine last year to get things under control. Stopped prednisone earlier this...
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