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Thanks Pete. It does help to vent once in a while.

I found my way back to this Forum! So much has happened since I posted here last. I wish that I could say that my Daughter is all better but unfortunately that is not the case. The past 5 years have...

Sangye, Next appointment I will ask that. Thank you all for your interest and information.

I'm not real sure exactly what the Doctor based the diagnosis of Wegener's on. She is (+)ANCA, has had severe sinus problems for years, shortness of breath with minimal exertion, crusting in her...

Listed below are the organs commonly involved in Wegener's Granulomatosis and the specific disease manifestation(s) in each organ.

Ear
Eye
Nose
Sinuses
Trachea
Lungs
Kidney
Skin

I am just learning about all of this but wouldn't the Wegner's & the COPD account for her difficulties?

Well another very long day full of tests and an appointment with the Pulmonologist. The PFT did not go as well as we had hoped. My daughter's lung compacity is 40%. The Doctor said she has the lungs...

It is a very long story but I will start with a condensed version. My Daughter(30) got sick, flue like symptoms, around the 1st week in March, 2010. While in the ER her right foot went numb(foot...