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My daughter has been on 2,000MG of Cellcept/day for the past few years, and it has worked well for her, but she also had IV of Ruituxan and that's what seemed to put her into remission. Our current...

My daughter was diagnosed with "Limited WG" because it was only in her sinus area, the minute it moved to her lungs they said she had full blown WG, but I'm with you Jack, WG is WG and less of it...

Hi! First I want to say I'm sorry you even have to deal with this, my daughter was 15 when she was diagnosed, I can't imagine going through it at 8. We live in Foothill Ranch, CA (close to Irvine)....

I can't imaging having this disease at any age. I think there are many more young people out there with this disease but it's just undiagnosed!

No, she is not on prednisone now, only Cellcept. She has gotten the prednisone in the begining of this journey and she takes it when things start to flare up, but thank God it's been awhile!

I am the mother of a beautiful daughter with WG. She was diagnosed at the age of 15 after MANY years of nose bleeds, sinus infections & colds that never seemed to respond to antibiotics & doctors...

Not sure how far you are willilng to drive, but my daughter has GREAT doctors here in Orange County, CA. She was diagnosed at 15 and being treated at CHOC in Orange where she almost died because they...