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Have not posted lately but after 7 yrs. pred. will no longer be on my list of daily meds. Still on infusion but hoping this will soon be gone also.. Still dealing w/stroke and working to get some...

I started at 80mg. and now at 5mg.for about 1yr. "moon face"

gone for now.. Sometimes I have swelling around eyes.

Thanks to all, Will follow up w/Dr.. Have a good one my friends...
LIFE IS GOOD...

I have had Wg for 6 yrs just in last few months having foot pain, anyone having this, could be nerve not sure.. On 5 mg prednisone and infused with Remicade.:glare:

I was dig. with wg Oct.2007, massive stroke Dec.2007, I have problems with sleep 3-4 hrs a nite, some nites no sleep. Sleep meds do not work for me..

Thanks DD I am feeling OK but not eating much and lost weight, for the last few months I have been drinking Boost, and Breakfast drinks to try to keep my weight up the most I ever was @ 200 lbs...

I have had wg for about 5 yrs, from time to time I lose my appetite.. Is this something any of you have had to happen? ty/rt.

The Remicade has worked for my WG, I have been infused every 6/8 wks for 4.5 yrs and my WG has been inactive for about 2 yrs. I was unable to take the and other meds for the WG so the remicade was my...

It appears the Remicade has worked for me, I have been infused for 4.5 yrs now and the WG is inactive @ this time..r/t

I had shingles in 2009, very painfull my DR. told me chicken pox virus causes this, I hope I NEVER GET IT AGAIN..

:rolleyes1:Not new here, but been awhile logging on, had trouble with e-mail had to repair with Andrew. My WG doing pretty good, not active @ this time, hoping to come off infussion soon (REMICADE)...

have any of you ever been infused with REMICADE for WG. After seeing meds all of you are on I am concerned that I dont here any thing about Remicade being used for WG.

Hello Andrew: Good to here from you! YES I AM POSIVE ABOUT MY SITUATION! WHEN I was told i had WG my family and I were very sad because I have never had any majior health concerns. My son and I own...

HI TERRY. Thank you for your concern, I am sure i will get better soon. HOPE YOU ARE DOING WELL TODAY. RT:)

:cool: SO GLAD TO FIND PEOPLE THAT KNOW WHAT MY WIFE AND KIDS ARE TALKING ABOUT. I HAVE HAD WG 1 YEAR, ALSO HAD STROKE THAT COMPLETLY DESTROYED MY LIFE AND BUSINESS. LOOKING FOWARD TO MEETING YOU...