Hi I am being seen at Addenbrooks by Dr Jaynes team,but havent seen a Respiratory consultant for a year, my last lung function test was requested by my rheumatologist,who i now realise does not know...
Type: Posts; User: alive and kicking
Hi I am being seen at Addenbrooks by Dr Jaynes team,but havent seen a Respiratory consultant for a year, my last lung function test was requested by my rheumatologist,who i now realise does not know...
I am after some advice, i am getting conflicting stories, so thought i would come straight to the ones in the know with experience.
I have WG and had a double diffuse alveolar hemorrhage 2 years...
I have Ritux Phil, its doing ok by me so far,so hope it does for you! Good luck!
I am so very sorry to read this, very sad news. She will be missed xx
Jack gave me such wonderful advice when i was diagnosed,a great support and a great man,and his passing is a deep felt loss in the world.My love and condolences his family,and to every one who has...
Hey Geoff how are you? Sorry i've not been on was knocked for 6 these past few cyclo's, fingers crossed i behave myself and dont need it again, but i wont hold my breath pardon the pun! lol
My...
Thank you :)
She was great, thanks for the referral!:)
Shes the first of a dozen drs to share our concerns about me having a stroke in spain, so examined me and sending me for brain scan,and sinus scanned...
Thanks elephant i will, i know i cant believe how sneaky it is, snuck up on me and gave me a good kicking i can tell you lol!
I know its not really to be laughed at,but with out my sense of humour i...
No it was Dr Neville respiratory, if you need to see someone there he is very good, has a bit of a rep for his bedside manner but i found him ok, and what he doesnt know isnt worth knowing.
Rheumy...
I'm seeing her on friday 5th nov. So i will let you know what she says :)
on the downside had to start iv cyclo again friday,lung function is shot,back below 50% again.
And symtoms in general...
Hi JAck,
Am now getting sorted slowly, looking to be referred to a new rheumatologist, gp is on the ball.
Respiratory has been sorted too now, my lung capacity is up.
But symptoms are back so ...
Hi :) have seen respiratory and rheum, but am getting gp to refer me to McCrae as im not happy with rheum. my lung capacity is better now 61%. Still on 30mg a day of pred as symptoms have come back...
My sister-in-law has worked with Dr McCrae during her training. She said she was really good and very helpful. How are you doing now? What drugs are you on?
Not had the delights of the pharmacy as...
The icu was faultless, clean and efficient. But the ward!!!! Oh my! Dirty, the staff were awful,some cleaned my central line with no gloves!! not good.
~Thanks for your welcome :)
Hi Ju and jason.
I was diagnosed on august the 9th 2010,so i know exactly how you're feeling, i had pulmonary hemorrhaging when i was on hols in spain in july,and after icu for 2 weeks,a week on...
I only flew home a week ago,and was in my local hospital until weds this week. My GP is useless, will be ringing them again today to give them a quick kick in the behind. My rheumatologist is...
Hi all,
I am newly diagnosed,after original diagnosis of psoriatic arthritis. Now we know the arthritis was a symptom of wegs.
I have had nasal drip for about 2 months,arthritis for 8...