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The paypal link works very well.

Thank you, andrew, for keeping this wonderful home for us during all those years.

Sending our donation in celebration of my beautiful Phil's birthday. I can't...

I can't bear the "limited" title :sneaky:

I was considered to have "limited wg", "only" in my lungs, nose and ears in the first years. So for the few couple of first years the only treatment that...

Happy Birthday dear @mishb :hug3:

https://youtu.be/EqxFd_7dWx0

I like it how they cheered up for him. May it be ours for you :love:

May your day be as awesome as you are
And may you
Keep...

I thought we can have this thread to update, how are you doing, my friends ?

Thank you, vdub.

I hope that you are doing well. If you feel like sharing how are you doing, please do. Although I guess not in this thread but in another ...

Another wg warrior flied high, Lisa MacNutt from Little Rock, Arkansas.

She was infected by covid and it started a chain of breathing problems. They tried the vent in order to calm down the...

Happy Belated Birthday, andrew :hug3:

Sorry for not being here on your birthday (I was too sick but am recovering now).

Do you live in a lockdown area ? How are things over there ?

Every year on this day, the time stands still, and I am back there, on that night in Foothills Medical Center... 7 years ago now.


... The sudden knocking on my door waking me up scared around...

Dear drz,

So sorry to hear about your pain :crying:
I think it might be the result of too much coughing ? I think we should hold a pillow tight to the chest when we cough a lot in order to...

Leflunomide is a maintenance med like mtx or imuran. But it also treats the wg not bad at all, at least for me.

I am glad that you are doing better. Step by step. How are things so far ?

I got the third pfizer vaccin about a month ago. Israel started first in the world with it and immune compromised patients were the first to be invited to get it.
I only had a bit of a sore arm. I...

Hi Lilly,

It is OK to cry. Better let it out then holding inside. You have been through a lot and it is indeed very painful.

Blessed are those who mourn, for they will be comforted.
...

Hang in there, Peter and drz. It takes time to recover from a flare especialy if it is the result of the vaccin. I spoke with a rheumatologist in Israel who investigates the correlations between...

Happy Birthday dear annekat :wub:

May you have a lovely birthday, full of blessings, joy, peace and LOVE :wub:

I hope you can celebrate safely, considering the covid situation.

I still...

Paypal do take some fee for all transfers from Israel.

Thank you so much gilders. Happy Birthday to your wife. In Hebrew we say, May she be different from them by having long good life.

I just found a post from yesterday. So I hope it means that you are well, drz.

Has anyone heard from drz in the last 10 days or so ? I am worried about him... drz please let us know how are you doing. I pray for you.

Happy Birthday in heaven, sweetie.


It's hard to believe that 7 years have passed since your last birthday on earth, since I was your last gift here.


But you have been and will allways be...

It is @pberggren1 's birthday already in Oz, so I just made the yearly donation from both of us.

@andrew, I sent to your paypal but then I saw that there is another link here.

Please let me...

Dear drz,

Thank God the rtx treaemt went well and that you can control your diabetes even if it is complicated.

My first rtx IV also lasted about 8-9 hours and this is how it should be...

Dear drz,

So sorry, I hoped it was not a flare... My heart goes out to you...

It sounds that you have good docs with a good plan of treatment. So relieved to know that you have a machine to...

Happy Birthday, my beautiful friend @mishb :wub: May your birthday be as awesome as you are :wub:
@pberggren1 and I love you and wish you many blessings :wub:

Welcome to the forum.

CT once a year sounds ok. But blood tests should be done more often, first every month and later every 3-4 months.

If I remember correctly we had here someone who had...

Thanks for the important info.

My Igg and Igm have dropped below the normal so for now I am not allowed to get rtx. My dr prescribed me Leflunomide, which works well for me, although my wg is...