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    Re: Hi I'm Arlene and I'm new here!

    So, I don't know if this will help, but I've been thinking about this for awhile, and I'll give it a shot. It's about the weight loss. I have had occasional problems with weight loss during WG...
  2. Thread: Hair Loss.....

    by Ruby
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    Re: Hair Loss.....

    Okay, so I will most readily admit hair loss is important to me. In fact, I have always been exceedingly vain about my appearance. There, I said it. I wish I could get over it, and I am slowly...
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    Re: Hi I'm Arlene and I'm new here!

    Hi Arlene,

    Welcome. I'm pretty new here too, but I've had Wegener's for several years and I've been through a lot of ups and downs. I'm sorry you have been through so much, but I believe you...
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    Re: Let's talk about "limited" Wegeners...

    I was told by a pulmonologist that I had limited Wegeners when I was first diagnosed. At the time I had both kidney and lung involvement. I asked him what he meant and it seems like he said...
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    Re: Happy birthday wegeners-granulomatosis.com!!

    I arrived a little late for the party, but Happy Birthday everyone! I really just wanted to say THANK YOU to Andrew for setting up and maintaining this site. I know it must be a great deal of work,...
  6. Re: Hello everyone! Iím a Wegenerís patient diagnosed in my early 20s

    Hi Anabanana and Freaky Schizogirl,

    I have the same fondness for prednisone that both of you have. That is I hate it. I've been on high sustained doses with what seemed to me an agonizingly slow...
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    This is my first post

    Hello,

    Please allow me to introduce myself. My name is Ruby. I was diagnosed with Wegener's about 16 years ago. I had typical symptoms and was being treated by an ENT doctor for what was...
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