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Type: Posts; User: lag713

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    I know corticosteroids like prednisone often...

    I know corticosteroids like prednisone often cause bone density loss. I haven't taken prednisone so that wouldn't explain it.

    Memory loss is expected when there's so much to remember!

    I know...
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    I would love to continue this trend of Putin pics...

    I would love to continue this trend of Putin pics with more absurd pictures of Putin without a shirt on (he must be one of those guys at the gym that stares into the mirror in love with his own...
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    My levels were checked over the past 2 years and...

    My levels were checked over the past 2 years and I've taken Vitamin D supplements (daily multivitamin to prescription strength) on an off. My recent blood work showed a slight insufficiency of...
  4. Thread: Omg pain!!!

    by lag713
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    Nikki - It may be worth looking for a neurologist...

    Nikki - It may be worth looking for a neurologist as a second opinion regarding migraines. Your ENT may be really off base or it could be "atypical migraines" (see below).

    I developed migraines...
  5. Thread: Omg pain!!!

    by lag713
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    It sounds like you need to upgrade to a better...

    It sounds like you need to upgrade to a better ENT. :bored:

    I hope your vacation is relaxing and helps quell some of the anxiety! My fingers crossed for you!
  6. Thread: Omg pain!!!

    by lag713
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    Sneaky wegs indeed! Nikki - I'm so glad that...

    Sneaky wegs indeed!

    Nikki - I'm so glad that you'll be starting rtx soon. I think that makes sense based on the way other doctors have described the heavy hitters in the following order CTX > RTX...
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    Bone Mineral Density Question

    Questions: What are your experiences with bone mineral density changes? For those with low or decreasing bone mineral density, what did your doctor recommend? Changing medications? Lifestyle changes?...
  8. Thread: I'm so dumb

    by lag713
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    I was called in early for an urgent appointment...

    I was called in early for an urgent appointment because my blood work looked like I was having a flare. I met with my rheumatologist's physician assistant and was very relieved to discuss the...
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    Oh Alysia, these are so beautiful. I could barely...

    Oh Alysia, these are so beautiful. I could barely begin to read the first poem before crying the tears I was trying to hold back. What a wonderful thing to share with us here, now, in memory of Phil....
  10. Thread: I'm so dumb

    by lag713
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    Thank you for this perspective! It's a lesson...

    Thank you for this perspective! It's a lesson learned no matter the outcome. Wishing you health and wellness!
  11. Thread: I'm so dumb

    by lag713
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    I'm so dumb

    I'm so dumb. I felt like my rheumatologist wasn't hearing me when I asked about trying to go off medication to see if I was in remission. I made my own decision to go off methotrexate. I made a...
  12. Thread: Question

    by lag713
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    Related to your question, the ANCA test isn't the...

    Related to your question, the ANCA test isn't the best measure for disease activity. The sed rate and CRP are better indicators of inflammation and disease activity as you monitor your status. My...
  13. Thread: Hello :)

    by lag713
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    Welcome Dawn! Thank you for sharing your story....

    Welcome Dawn! Thank you for sharing your story. I'm glad you have a diagnosis. I'm sure being ANCA-negative delayed that process. It sounds like you're getting good care. I've never been into punk...
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    Thank you for sharing your experience, Michelle!...

    Thank you for sharing your experience, Michelle! I'm glad the biopsy went well and came out positive so you had some conclusive answers.

    I'm looking forward to meeting Dr. Monach after hearing...
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    Thank you for describing your experience, Anne! I...

    Thank you for describing your experience, Anne! I really appreciate it. My ENT hasn't suggested that I need it. I will ask about it next time I visit (now that it doesn't sound so scary).
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    I was diagnosed with asthma by a pulmonologist...

    I was diagnosed with asthma by a pulmonologist after having shortness of breath. He used PFT test results to establish that I had asthma and reviewed my rheumatology records and agreed with the GPA...
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    Thank you for sharing these! They're wonderful....

    Thank you for sharing these! They're wonderful. :hug1:
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    Thanks Michelle! How would you describe your...

    Thanks Michelle! How would you describe your biopsy? I haven't asked for a biopsy because it seems a bit scary. I've been scoped from my nose to my upper lungs a couple times. It was simple enough.
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    Welcome Dawn! I recommend introducing yourself...

    Welcome Dawn! I recommend introducing yourself and sharing your story in "New Member Introductions" so the welcome wagon can greet you.
  20. Thread: Surgery

    by lag713
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    I've done a PFT test with a spirometer to assess...

    I've done a PFT test with a spirometer to assess my asthma. It was very short but challenging on my lungs. They really want to see what your lungs can do. The link below should give you a better idea...
  21. Thread: Poconos, PA

    by lag713
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    It worked and it's perfect! :thumbsup:

    It worked and it's perfect! :thumbsup:
  22. Thread: New to site

    by lag713
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    Welcome to the group Seashells! I'm sorry you're...

    Welcome to the group Seashells! I'm sorry you're having trouble with your breathing again. I would be sure to check it out with your pulmonologist and/or ENT soon. As Anne said, methotrexate or...
  23. Thread: Poconos, PA

    by lag713
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    Welcome to the forum! I hope you find support and...

    Welcome to the forum! I hope you find support and answers to aid you here. We're quite an interesting rag-tag group. I hope you're able to get your treatment on track and feel better soon.
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    Welcome MB! I wish I could give you some advice...

    Welcome MB! I wish I could give you some advice regarding cytoxan but I've only been on methotrexate. I'm sorry that you've been through so much and don't have a clear diagnosis yet. I hope the...
  25. Thread: New member

    by lag713
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    Welcome Lisa! I hope that you're able to find the...

    Welcome Lisa! I hope that you're able to find the support and answers you're looking for in this forum. Soapbox speeches are always welcome too. :wink1:
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