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  1. Thread: First Flare?

    by brew22
    Replies
    9
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    20,927

    Re: First Flare?

    I lost half my hair and starting taking Biotin and it all started growing and is back to normal now..So I think it helped..but not sure
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    They were so wonderful and an inspiration to us...

    They were so wonderful and an inspiration to us all!!
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    I will look for you in chicago!!!!

    I will look for you in chicago!!!!
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    I hAVE HAD GOOD LUCK WITH IMURAN!!!

    I hAVE HAD GOOD LUCK WITH IMURAN!!!
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    19,924

    still looking!!!!

    still looking!!!!
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    Still Looking!!!!!!

    Still Looking!!!!!!
  7. Replies
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    Will you have to have more infusions of RTX or...

    Will you have to have more infusions of RTX or only is you flare?? thanks Susie
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    Do you take any maintenance type drugs ??

    Do you take any maintenance type drugs ??
  9. who is your Dr, I am finding so many use rituxun...

    who is your Dr, I am finding so many use rituxun as a mantenance and wonder what part of the country they are doing this...
  10. What dr. do you go to and where... thanks Susie

    What dr. do you go to and where... thanks Susie
  11. Replies
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    To Max D. Who is your Doctor ? I had one doc want...

    To Max D. Who is your Doctor ? I had one doc want to follow your plan and the other want the imuran and 5mg predict which is what I am doing now thanks for the info
  12. Replies
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    4,696

    Who is your Doc?

    Who is your Doc?
  13. Replies
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    3,953

    Amanda what beautiful post.... for Alysea.. You...

    Amanda what beautiful post.... for Alysea.. You are so right about her loss.. And Alysea please know that I have thought of you as well and although your story is a sad one the love you two had for...
  14. Replies
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    Right now after 9 months of having this disease...

    Right now after 9 months of having this disease my biggest trail is fear of a flare. I just don't want this experience to start up again. I am learning how to handle just living with it in remission...
  15. Replies
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    Yea!!!! You will be fine!!!!!! We need to be...

    Yea!!!! You will be fine!!!!!! We need to be advocates for ourselves!!! Good Luck Healing thoughts going your way... Love Susie
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    Oh dear... I would go to ER but make sure your...

    Oh dear... I would go to ER but make sure your see someone familiar with Wegs....You are in my thoughtsLet us know how you continue to do....Yours Susie
  17. Replies
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    I am in Lansing Mi ..if you get this way..... You...

    I am in Lansing Mi ..if you get this way..... You can meet another weggie in person!!! You are inspiring as you seem to be living a pretty good life!!Yours Susie
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    Did you ever find a Doc in MI!!!

    Did you ever find a Doc in MI!!!
  19. Thread: Vitamin C? ????

    by brew22
    Replies
    13
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    3,575

    I dont know about the Vit C but all 3 of my Docs...

    I dont know about the Vit C but all 3 of my Docs reccomended the flu shot which I got... Susie
  20. Replies
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    OMG That was a terrible experience!!! i am so...

    OMG That was a terrible experience!!! i am so sorry but SO glad you got through it all... I fear of getting that nasty bug....Now for a happy and HEALTHY New Year!!! Susie
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    I AM IN REMISSION BUT HAVE THE CARPEL TUNNEL PAIN...

    I AM IN REMISSION BUT HAVE THE CARPEL TUNNEL PAIN AND THE TINGLING AND PRICKLING IN BOTH MY FEET.. ONE OF MY DOCS SAID IT WAS FROM ALL THE TRAMMA MY BODY HAS GONE THROUGH AND PROBABLY WOULD NOT GO...
  22. blu Do you also take Prednisone???

    blu Do you also take Prednisone???
  23. Rituxan was the miracle drug for me and put me in...

    Rituxan was the miracle drug for me and put me in remission.. I had no side affects that I was aware of.. relax and know it will help your body to heal... Let us know how it works out for you Love...
  24. Replies
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    I would love togo and will check it out!!

    I would love togo and will check it out!!
  25. Replies
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    Thank you so much for posting your story.. It is...

    Thank you so much for posting your story.. It is lonely to have a disease that no one has ever heard of and no one you know has! I have not done my story yet but not too different then yours..I was...
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