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    My Granulomaversary

    Hard to believe but it has been eight years since my diagnosis in 09. I am thankful to be here and all the friends I have met on this journey. I don't say a lot here simply because I have been in...
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    Just catching up with this Jana, sorry to hear of...

    Just catching up with this Jana, sorry to hear of this. I'm sure everything will work out. Will be thinking of you.
    Dale
  3. Thread: 5 Long Years

    by renidrag
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    Ditto to what Debbie C. said.

    Ditto to what Debbie C. said.
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    Sorry you have to go through this Debbie. Dale

    Sorry you have to go through this Debbie.
    Dale
  5. Thread: New Member

    by renidrag
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    Thank you for sharing. I was diagnosed in 2009...

    Thank you for sharing. I was diagnosed in 2009 and in remission since June 2010 with one small bump in the road. Others will be along to welcome you also, best to you.
    Dale
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    Well said Pete!

    Well said Pete!
  7. Thread: sadness

    by renidrag
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    I learned a while ago from a single Mom that I...

    I learned a while ago from a single Mom that I was dating that you have to grab and hold on to a happy moment, no matter how short, when it presents itself. It took me a while to understand but when...
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    I hope this counts, when I got my new phone,...

    I hope this counts, when I got my new phone, there was an app for keeping track of your vitals and such. It tracks walking and stairs and even steps. I average 3 miles of walking when working at...
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    I will look into this also as I would like to try...

    I will look into this also as I would like to try it. Pot is legal in Mass now so more doors are open to us. I would love to be able to walk without pain, I don't know if it works for that but...
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    Congratulations DD, working on year seven for me,...

    Congratulations DD, working on year seven for me, and still have Dr's number on speed dial. Fatigue seems to never go away but have pushed myself to part time gig at big box store. Now for more...
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    Sorry about this, will be thinking of you today. ...

    Sorry about this, will be thinking of you today. Best to you.
    Dale
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    Cheers to you Pete.

    Cheers to you Pete.
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    I'm ready to go, only heard from one and she...

    I'm ready to go, only heard from one and she can't make it but looking forward to next time. Don't know about CT yet.
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    I'll be there, notified CT and another friend.

    I'll be there, notified CT and another friend.
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    Okay, any bites on the WG page? Burlington here...

    Okay, any bites on the WG page? Burlington here we come.
    Dale
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    I think we should wait till the new year and...

    I think we should wait till the new year and perhaps make it a little closer to Worcester. Some where in between Boston and Worcester.
    Dale
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    20 works for me too. I'll let Connecticut know. ...

    20 works for me too. I'll let Connecticut know.
    Dale
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    Burlington is fine with me. I'll eat anything....

    Burlington is fine with me. I'll eat anything.
    Dale
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    I am south of Boston but close to major highways...

    I am south of Boston but close to major highways in any direction. I have reached out to a weggie in CT, and I know there are weggies in Maine, I will try to get a hold of some of them.
    Dale
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    We have a lot of friends in Connecticut, NY, NH,...

    We have a lot of friends in Connecticut, NY, NH, ME, RI and Vermont also that I haven't seen here for a while, I suspect you should let this stay out there for a while so others can see it and...
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    I'm in Dale

    I'm in
    Dale
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    I am the exception, drug free remission. Doesn't...

    I am the exception, drug free remission. Doesn't happen too often. Best to you on your journey.
    Dale
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    I was diagnosed in 2009 and have never had a...

    I was diagnosed in 2009 and have never had a positive ANCA. I have been in remission since mid 2010 and remain there. ANCA is not the be all end all to diagnosing WG, I think inflammation markers...
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    As most of you said, not to over do it I...

    As most of you said, not to over do it I immediately went out and over did it. Because of the Neuropathy the sense of feeling in my feet is compromised. I did not feel the blister the size of...
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    Another tour around the sun, happy birthday. Dale

    Another tour around the sun, happy birthday.
    Dale
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