I would suggest that you should listen to your body. If it says "I am tired" then absolutely rest and nap and do not feel guilty about it. Boring can be a good thing for us.
Type: Posts; User: Hal
I would suggest that you should listen to your body. If it says "I am tired" then absolutely rest and nap and do not feel guilty about it. Boring can be a good thing for us.
Still got swelling and nerve damage that requires pain killers. It is what it is. :-)
This is easier said than done, but keep exercising to offset the weight loss, which I assume is from the Prednisone? I gained 40lbs but am currently -50lbs from what was my maximum weight due to...
Middlesista,
I had both hearing and some vision loss when I was originally getting sick, and the inflammation was increasing. Neither the ENT doctor nor the Eye Surgeon were able to see the bigger...
Hello, yes I had those when I landed in ER, along with most everything else in the book for Wegs. I assume the clots were triggered by the messed up circulation in the legs. My blood clots were...
Hello. Whilst having a Wegs diagnosis will be life-altering, in a way, it will be good to confirm if it is or is-not the case. That way you wife can get started on a treatment plan.
As for the...
Hello Woz... welcome.
I agree with above comments that taking you off Cytoxan after 3 months might be too early. Typically the dosage is based on body weight and the standard treatment is 5-6...
That is scary but I too was experiencing sporadic vision loss in one eye three years ago prior to being diagnosed. I must have caught it in time, since my eye was experiencing patchy "greying out" in...
I too had Scleritis before I got diagnosed. The one only other suggestion I might add to the great comments above, is to watch out for any temporary loss-of-vision or "greying" in your field of...
This is quite fascinating actually!
Hal.
I have been working with an Occupational Health & Safety specialist at the local hospital over the last number of weeks. She has fitted me with custom insoles that I simply move from one pair of...
Hal,
I hope everything continues to improve for you ... give it time!
(the other) Hal <wink>
Hello Dianne, small world indeed!
Speaking of which, both KarenH and I did indeed work in the same building for years, same floor (different divisions). What are the odds that two people, in those...
My feet are generally like this too. Need pain killers to mitigate the burning too. I find I walk slowly and gingerly when in bare feet, say in the bedroom and bathroom. I roll my eyes when I bump...
Actually, ( tourism advertisement here ---> ) there is no where on the planet that has fresher cleaner air than here. Up until I got sick and the swelling / nerve damage in my feet grounded me, I...
It is a tough slog. Most of us have been through it to various degrees and can relate. We have excellent doctors here. You are finally diagnosed and your ANCA numbers are trending down, so the...
Karen,
The dialysis must indeed be horrid. I was diagnosed in August 2010 and started the heavy duty drugs in early September. I had a lot of body functions going wrong simultaneously, including...
Karen,
Where in Newfoundland are you? I am in the St. John's area. You are the only person from here that I have crossed paths with here on this forum. I have corresponded with two other gentleman...
Meredith,
I too experience heel and foot pain. I have nerve damage, which means a lot of the surface area on the pads of my feet and around the ankles have no sensation, but my heels and bottoms...
Hello Nessa,
When I was diagnosed and started reading up on how nasty this disease can be, I too was shell-shocked for a period of time. One of the more therapeutic things I did was make my first...
I have a Sharp Plasmacluster in the bedroom. It is 4-5 years old. I like it a lot, but the only downside is the price of the replacement filter, which is $169. I cleaned out the filters two weeks ago...
Hello Harvi,
When I got sick, just before I went to the ER because of the intense pain in my legs, I too was getting a lot of red spots in my legs. The doctors did not know what they were, but in...
Hi Manalolana,
I have not read this entire thread, but if not mentioned already, you might have Scleritis. This is the redness and pain associated with Wegs. I had it bad in both eyes (especially...
This is a good presentation. Thank you for bringing it to our attention... cheers!
I have had the flu shots each of the last two years. Last fall/winter I was taking Cytoxan, and the year before that I had the HiN1 shot. At the time I was not diagnosed but in hindsight, the...