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Type: Posts; User: Keli

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    Wanted to say Thanks to Sangye and this forum

    A few months ago I was worried about my treatment. I was up to 100mg of prednisne a day and had gone through 9 months of cyclophosphamide infusions. I was about to sat Rituximab and was worried about...
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    I just received my first infusion on Tuesday and...

    I just received my first infusion on Tuesday and have runny nose as well. To deal with it I use the neil med sinus rinse twice a day. Seems to clear it up and isn't horrible to do. I just can't...
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    I started with lung, eye, sinus and joint...

    I started with lung, eye, sinus and joint involvment. Now I still have scleritis in my eyes and my sinuses still give me a little trouble but nothing that isn't managable. I noticed a swollen ankle...
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    I would be interested in some more information...

    I would be interested in some more information about these groups. It is a drive for me from NoVa but once a quarter, my husband and I could use it as a mini vacation lol.
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    My Meds.. someone help! lol

    I think I am at a point where I am just lost and confused. I am wondering if my med regemin looks normal for someone with an active case of WG. I just don't know what to ask or where it seems to be...
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    wow! I will have to look into to it. I had a dexa...

    wow! I will have to look into to it. I had a dexa scan a few weeks ago and they showed small bone loss in my spine. They did say they I needed to get off the prednisone soon. I certainly wouldn't...
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    I am located about 40 miles from Washington DC....

    I am located about 40 miles from Washington DC. Which pute me about and hour and half from Johns Hopkins. However, I am a military spouse so I stuck with what tricare
    (our insurance) is willing to...
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    Starting my Rituxan round Tuesday

    I must admit I mostly read through the forums rather than post. But now I starting to worry just a touch. I had been put on cytoxan for 9 rounds and it seemed to clear everything but the extreme...
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    I welcome all opinions... makes me think and...

    I welcome all opinions... makes me think and helps me ask the right questions when I get with the doctor. She has mentioned methotrexate before. I have an appointment on the Thursday with my Rheumy...
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    Newly diagnosed in WA

    I was pleased to have found a forum for Wegener's. I was diagnosed 2 weeks ago after being sent home from the ER multiple times with a bottle of percocet for pain and an allergy medication. Being...
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