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Type: Posts; User: NatriceRomeo

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    Re: Another Warrior has lost his Battle!

    So sad. Thinking of her and her fam


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  2. Re: Anyone here receive Evusheld for covid prevention?

    I recently received monoclonal antibodies due to a false positive Covid rapid test. My rheumatologist said that the monoclonal antibody lasts 3 months. After 3 months she wants me to receive...
  3. Re: Hello everyone! Diagnosed with Wegeners in my early 20s

    Welcome Pryana! I’m sorry you got diagnosed with this disease but happy you are here!
    Natty


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    Re: Covid vaccins and WG

    I had a significant bout of Covid and am still dealing with the repercussions in November 2020. I did not have Rituxin for 10 months. Got the Phizer vaccine. I did not develop any antibodies to the...
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    Re: Happy Birthdays Thread

    Happy birthday [emoji3060] Andrew!


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    Re: Third Vaccine

    Wow! That’s an amazing story.


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    Re: A great doctor wants our help

    I know I am late to this conversation. I will add that I have a rheumatologist and a pulmonologist from the same hospital group that “speak” about my case to each other for my treatment. My problem...
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    Re: Happy Birthdays Thread

    Happy birthday [emoji3060]


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    Re: Ongoing GPA symptoms with negative labs

    Hey Nancy,
    I feel like we have many things in common.
    I was diagnosed 25+ years ago. I work in health care. I have been on Rituxin for a few years. Was diagnosed with covid in November and had...
  10. Re: Dr. Appt. - Vaccine did not work (no antibodies)

    I am sorry the vaccine did not work. I was supposed to receive Rituxin last October but had cancelled the infusion because my daughter got placed in quarantine. I ended up getting COVId in November....
  11. Re: Managing symptoms and treatment for a flare

    Dr Z,
    Several weeks ago I felt that I was getting pneumonia. I went to my Dr & she said I sounded clear (I had been using inhalers) & she felt that I had a PE. My chest X-ray was normal and she sent...
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    Re: Another Warrior has lost his Battle!

    [emoji22]


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    Re: Happy Birthdays Thread

    Happy birthday!


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    Re: Covid vaccins and WG

    I received the Pfizer vaccine yesterday. So far everything is going well. I have a sore arm and a headache.
    Because I was infected with Covid-I’m very behind on my Rituxin treatment. I do not know...
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    Re: Covid vaccins and WG

    Thank you for all your kind thoughts! I still am suffering from shortness of breath. It’s really interesting on calls (I am a paramedic & I have gone back to work). I am unsure how much of it is...
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    Re: New member diagnosed in January 2020

    Oh my goodness! I am so pleased you got better. It’s scary thinking that so many people whom get as sick as you did, do not recover well. I’m sorry you got the diagnosis but happy you found us! ...
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    Re: Celebrate how far we have come!

    Happy thanksgiving! I hope each and everyone of you are staying healthy and happy!
    Natty


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    Re: Covid vaccins and WG

    So, I work in healthcare. I was Covid tested the week before because I had sinus issues and it was negative. I went on antibiotics. On the 6th I woke up and lost all sense of smell. I contacted my...
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    Re: Covid vaccins and WG

    I was diagnosed with Covid on the 6th. It has not been kind to me. I have had bilateral pneumonia, nausea and vomiting-still. That being said, I am worried about an mRNA vaccine. It just does not...
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    Re: Your Thoughts on Dying.

    DrZ,
    Thank you for reviving this topic. I looked through all the posts, and it is difficult to comprehend the characters and people whom seem so alive... and whom aren’t with us anymore. It makes...
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    Re: Coping with stress on current pandemic

    I recently watched a podcast with Dr Z and Dr Oriff, director of vaccine education at Philadelphia children’s hospital. He said in order for herd immunity to happen with a vaccine over 2/3 of the...
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    Re: Coping with stress on current pandemic

    Hi everyone,
    I am still working as a paramedic in St Louis. I was really worried when the pandemic came here. The fire dept I work for insists we wear N100 on every call and we wear simple masks...
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    Re: pberggren memorial thread

    I’m so so sad to read this. My heart is heavy for you, Alyssa and for Phil’s mommy. I hope she finds peace. You are all in my heart and in my thoughts.
    Natrice


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    Re: New to Wegener's, new to the forum

    Oh my goodness! Susan, you have been put through the ringer! I say quite often Wegeners is not for the faint of heart, hearing your story reaffirms my belief. I know you are new to this diagnosis but...
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    Re: Happy Birthdays Thread

    Happy belated birthday ladies! Hope you had a great day!
    Natty


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