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  1. Thread: Help

    by andrew
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    325

    Re: Help

    I'll just chime in with one thing. It's entirely the individual's choice whether or not to give money to strangers on the Internet so I won't stand in anyone's way. Just please don't be blaming me if...
  2. Thread: Mags

    by andrew
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    7
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    167

    Re: Mags

    G'day Mags
    I guess if it's balance then his ears are perhaps affected again? Is an ENT involved and do any of the Docs have much experience with WG...assuming they're not the same ones as last time....
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    Re: Your personal experiences in treatment?

    That'll probably happen a lot :) It makes you more resilient :)
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    Re: Your personal experiences in treatment?

    Exactly yes. During treatment I felt oh so much better but had to keep in mind that I was actually sick and pushing myself would only end up hurting pretty quickly :) I learned my limits pretty...
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    Re: Your personal experiences in treatment?

    Hi hi
    Interesting questions.

    I was originally diagnosed in March of 2003. It took until about 2008 or 9 to be in a chemically induced remission and a couple of years after that to be off all...
  6. Re: If you don't immediately see the post you just made....

    I feed on Trolls :) Yum yum....
  7. If you don't immediately see the post you just made....

    ...it's likely due to anti-spam plugins I have running. They're good but they're a bit feral and sometimes they can give me a false positive. So, if you don't see your post immediately it's likely in...
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    Re: Advise on migrating to Australia

    Thanks Prabu for re-typing your post after I accidentally deleted it! Hope someone has some more information for you :)
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    Re: Nice NYTimes article on chronic disease

    I and anyone here who reads this article will surely be nodding in agreement almost constantly as they read :)

    Thanks for posting and welcome to the forums!
  10. Thread: Donations

    by andrew
    Replies
    101
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    22,566

    Re: Donations

    Masha thank you so much!! You're awesome :) You have a merry christmas too! Much appreciated :)
  11. Re: The scariest 14 months of my life and then Wegeners

    Hi Veronica thanks for your story. You've been through the works! You're not giving up either which is great despite how you're feeling. Many of us have been to see a psychologist at some stage. It...
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    Re: Happy Birthdays Thread

    Thanks all! I had a great time staying with family in Sydney for five days and hanging out with my god daughter. Went to a couple of shows and ate way too much :)
  13. Re: forum working for everyone at this point in time?

    Yep - what Annekat said. Post as much as you like. That's what the site is here for :)
  14. Thread: Donations

    by andrew
    Replies
    101
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    22,566

    Re: Donations

    Thank you :) I don't feel any older than yesterday so I guess that's a good sign! Thanks for the donation xx
  15. Thread: Donations

    by andrew
    Replies
    101
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    22,566

    Re: Donations

    Hi Masha!
    You're awesome :) Thank you! Received with thanks :thumbup:

    Andrew
  16. Thread: Donations

    by andrew
    Replies
    101
    Views
    22,566

    Re: Donations

    Received :) Thank you so much Masha :thumbsup: Very much appreciated!
  17. Thread: Donations

    by andrew
    Replies
    101
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    22,566

    Re: Donations

    Thank you so much Alysia !

    Yes received with thanks from you and Phil :thumbup:

    I think Paypal made some changes as well as me changing the default currency I think :)
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    Re: Kidney Involvement

    Good luck with the test results!! How's your Sodium Bicarbonate level? Mine was low and my kidney function increased when the doc prescribed me a supplement.
  19. Re: Awesome Eye Dr (Boston) - George Papaliodis, MD

    Thanks for the reminder! I had tested one product that looked promising but costs a bunch. Will get back onto it probably weekend after next.

    FYI all: Luan22 popped up on a spammers database and...
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    Re: ****A reminder regarding notifications****

    Bumping as a reminder.
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    Re: Tapering on predizone

    Any tougher and you'd rust :)

    Glad your Rheumy has the experience and I hope you start feeling better quickly with the upping of the pred. Nice that you got bloods done too! Keep us updated on how...
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    Re: Tapering on predizone

    Is this Doc the GP or the rheumatologist? If the rheumatologist then can you find another one that knows more about WG? I went through a couple before I found one that was up to speed.
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    Re: Tapering on predizone

    Well it could actually be a flare. Can you get bloods/an appointment any earlier than the end of the month? Would be good to know earlier than that if you can. Just to be safe I wouldn't be tapering...
  24. Thread: My introduction

    by andrew
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    Re: My introduction

    Hi Ellen!
    Welcome! You've had a relatively quick trip between initial sickness and diagnosis which is great. I was interviewed by some medical students after diagnosis as well. They do get excited...
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    Re: My Introduction & Story

    Ben
    That's quite a read! Thanks so much for posting! We do push ourselves very hard to carry on even when we're seriously ill. You've certainly done your fair share of that. Glad you got the...
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