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Hey there! Welcome! You've had quite the trip in many ways :) Some of what you said about thinking you were somewhere else resonated with me. I was knocked out cold in ICU and had some very lucid,...

Thanks all! Appreciate the feedback :)

Hey Sixto thanks for reading all that time. Welcome! We would be pleased to know your experience, thanks for sharing!

This received via email:

As you know i am a Wegener's patient i am 68 years old.
I have had several falls, sometimes when i am walking people think i am drunk because the way i walk , I can't...

Kids make me tired. The talk of triplets makes me three times as tired :smile1::laugh::blink::biggrin1:

Dutchie!!! There have been a few of my fellow Aussies sign up here recently. Welcome! Those headaches are horrid. I hope that the surgery fixes it. When is it happening? I'm glad Melbourne is opening...

Hahaha yeah track it down and kill it slow - that's the way to do it :)

I'm going ok. Been a bit over 17 years since diagnosis. Even though I'm in dug-free remission I have ongoing niggles from...

Hey Peter
Welcome and thanks for sharing your story. Where abouts in Australia are you? I'm in Canberra. Yeah it's a confusing time during that initial 'discovery' phase where you could be afflicted...

This via email from one of our members. Does anyone have any advice?

My biggest problem is skin infections from mosquito bites and living near Houston. The only thing to take is small doses of...

Hey Michelle, welcome and thank you for the great intro!
You certainly got it early but I'm sorry it's still mucking you about. Pred is a difficult thing - both a blessing and a curse and can take...

I've been getting my shot every year since my 2003 diagnosis. I'll continue to do so. Would recommend it to everyone.

Hey Gram!
Thanks for joining. You're right - she will feel a heap better after the surgery. It's a shame it can't just be done once and that's that. I hope she's not feeling too poorly. Good that...

Hi Lisa
Welcome to the club :) And what a rubbish time to get diagnosed too! I think the docs took the easy way out when they called it Covid. I wonder how often that happens. Seems like you got a...

Some may find these numbers interesting.

These are the stats for unique visits over the last month. This is how many times the site has been accessed.

2663

From those visits, a total of...

Yep it's the isolation that is the kicker to this. Fine when you have a family around you (well..maybe hahahaha) but not so fine when you're locked down for a reason you don't understand to protect...

It's a pleasure :)



Thanks for that, yes the default setup is a bit confusing. I'm working on making it more obvious - like displaying the actual forums/topics on the front page. This will make...

All good Alysia, at the point when we go to the new version you will just be able to log in as you did before. Same username and password so no need to have to remember anything.

Thanks Annekat. The forum has grown and become so valuable because of the community that's developed through people like you and me and everyone else that are looking for help and willing to provide...

Wow - plot twist indeed. I've never heard of Henoch-Schönlein purpura. Google tells me it's treated with steroids so at least you've been on the right course of treatment :) I also see that it's...

*blushing* thanks Marta. I'm glad you're still kicking! :biggrin1::thumbsup: The forum has come a long way since 2008 that's for sure. Wouldn't have done it without everyone helping each other out...

Hey hey
Send me an email if you get stuck or forget your password.
[email protected]

Oh and I should add...all the posts will be transferred over so we won't be starting from scratch...just in case you were wondering.

Hi all
Just wanted to throw this out there for comment. Some time soon I'll need to upgrade the forum software. This will make it look really different initially but once you give it a try, you'll...

Hi Dave
Thanks for joining and very happy that you got help from previous posts. Good to see. You've certainly had a long couple of years going through all that. Well done on insisting on a review....

And finally...
A decent donate page with two options. You can choose to donate via Paypal which has been the norm or you can use Stripe with which you can use credit card, Apple Pay or Google Pay.
...