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Type: Posts; User: kelly

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  1. Replies
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    Re: Prednisone, Diabetes, Flare

    hi Masha i have had this Wegener's since 2008 was in remission from Jan 2016 to may 2018 had a flair in May of 2018 went back on pred.and mtx in Feb of this year the mtx quit working
    so i received 2...
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    took the words out of my mouth awesome

    took the words out of my mouth awesome
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    hi Becky i am also from Calgary was diagnosed in...

    hi Becky i am also from Calgary was diagnosed in Sept 2008 i have been going to the rocky view there are 2 doctors there that have been awesome who are you seeing maybe we can share some info let me...
  4. your story sounds like a deja vu I also have been...

    your story sounds like a deja vu I also have been married for 36 years and also have lost a daughter in 2005 and was diagnosed with wegeners in 2008. I also have 2 wonderful granddaughters I also...
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    I had the same thing happen to me I stopped...

    I had the same thing happen to me I stopped taking pred in jan of this year I was going to go back on it I also thought I was having a flair did blood work it came back normal like you it's the best...
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    go for it if your able i have been to Mexico of...

    go for it if your able i have been to Mexico of all places Buffalo Vancouver Montreal and I going ti the Daytona 500 in A couple of weeks. i always fly with a mask on when we went Mexico my wife and...
  7. Thread: Questions?

    by kelly
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    hi Phil yes my DR told me to try sport drinks I...

    hi Phil yes my DR told me to try sport drinks I don't have them very often. I am extreamly active when I go to a spin class my calf muscles cramp up i drink about 2 liters of water and they still...
  8. Thread: Questions?

    by kelly
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    1,279

    i also have had cramps in my hands more so whern...

    i also have had cramps in my hands more so whern I am using my hands when putting stuff together with tools my hands cramp up a few hours later I am also on Methotrexate my DR told me to try sports...
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    awesome to here take care

    awesome to here take care
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    i go to the gym 3-4 times a week i lift more and...

    i go to the gym 3-4 times a week i lift more and can do more cardio then ever i have alway been active but never as strong as i am now i am very greatful for feeling the way i do im still on 5 mg...
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    hi Cindy i also had those purple sores on my...

    hi Cindy i also had those purple sores on my hands and one under my right index finger and lost the tip of it how about you are your fingers ok also i have noticed that when a flare comes on i get...
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    hi bips i totally fell the same way i to had full...

    hi bips i totally fell the same way i to had full blown wegeners and was diagnoised in sept 2008 with the prednisone i had a weight gain my wife and i joined a gym and i have lost 45lbs i have always...
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    Hi Pmarsh not that it matters i am from calgary....

    Hi Pmarsh not that it matters i am from calgary. i was diagnosed in sept 2008 i had just turned 50and i thought i was going to die i have been on meds for the whole time i put on 40lbs and proud to...
  14. Thread: vision loss

    by kelly
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    1,991

    hi germaine i have had some vision problems also...

    hi germaine i have had some vision problems also i have been to specialists and i am do for a nother eye exam in march. my vision is blured mostly at night and sometimes in the moring readine the...
  15. Thread: new menber

    by kelly
    Replies
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    753

    thats a long time

    they have cut my meds in half im still on cyclophosphamide prednisone,septra and didrocal. i go for a follow up next thursday the doc wants me of the cyclophosphamide but not untill the end of nov.....
  16. Thread: new menber

    by kelly
    Replies
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    753

    new menber

    i was diagnosed with wg on sept 1 2008. i was so glad that the dr's found out what i had i was in extream pain for three months all my jonts were barley walk i couldn't sleep my ear was sore i had...
  17. Thread: new menber

    by kelly
    Replies
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    613

    new menber

    Today 09:52 PM - permalink
    kelly

    i was diagnosed with wg on sept 1 2008. i was so glad that the dr's found out what i had i was in extream pain for three months all my jonts were barley walk i...
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