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Type: Posts; User: cutecats2

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    I believe te same s\weetie ... the thing i am...

    I believe te same s\weetie ... the thing i am dealing with is the loss . it hurts ...
    I will miss her soo much but there is no way i could have her here the way her poor little body was ..
    i soo...
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    you have a long road but if your daughter was...

    you have a long road but if your daughter was caught early then i hope it is solved easier ..
    Huggs and my thoughts are with you ..
    i will be here if you need more support .. to everyone ..
    Its...
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    Thanks Jack .. :>

    Thanks Jack ..
    :>
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    mom

    Hi all thanks for listening to me for these past few months ..
    Mom passed away on July 1st .
    she had wegeners and a teratoma ( symbiotic twin ) and the thing that finally got her was
    squamicell...
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    Mom

    Hi well there is intestinal involvment but rare .. of course my mom has everything rare .
    anyway they are just going with cancer at this point . but wont test for any wegeners tissue .
    so really ...
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    Huggs to all

    Thanks all .. its hard to find support out there for families and the patients .. so I am here if anyone wants to just chat you are more than welcome to emailll just ask . I hoep all of you are well...
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    Thanks hun .. so far so good she seems to be well...

    Thanks hun .. so far so good she seems to be well getting checked out so with luck she will be with us for a while longer .
    I hope soo ... i miss her definately miss her ..
    i am abotu 3 hours...
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    My mom ... Havnt been here for awhile

    Hi
    well my mom is in for yet another problem . she had intestinal involvement is there anyone else that has? anyway now there is a fast growing tumor . turns out that she has a symbiotic twin and...
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    Remember all of you

    As my Mother says this is a (colorful metafor ) inconvienience . It sure helps her and right now she has been through some rather hard intestinal involvement . please again i cant stress it enough .....
  10. Thread: Cough

    by cutecats2
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    Yes wonderful news !!!!

    Yes wonderful news !!!!
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    Anyone in Oregon ?

    My Mom is in lebanon , Oregon and i am located in Bend , Oregon . Didnt know if there was enough people for a support group here in Bend or in lebanon .. We all really need it .. The shoulder to cry...
  12. Thread: Cough

    by cutecats2
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    yep need a new doc and one that deals with wg...

    yep need a new doc and one that deals with wg patients .. they tried that with my mom and her eyes until she went blind for a time thats when they gave her another dose of pregnazone . dont let it go...
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    my moms nose has always ben hit .. when she was...

    my moms nose has always ben hit .. when she was in a remission state it didnt do anything but everytime it came back her nose was involved everything .. it would be nice to have everything...
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    well my mom when she was taking pregnazone did...

    well my mom when she was taking pregnazone did plan meals and had sever mood swings she didnt really care what she said to anyone soo please whatever you do you cant take anything he says personal ....
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    yes my mom has nose involvement it is now lumpy...

    yes my mom has nose involvement it is now lumpy and sideways a bit . We went to kansas city one year to learn about this disease and well that was about 15 years ago i believe . anyway there were...
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    i wouldnt at this point .. it really plays with...

    i wouldnt at this point .. it really plays with you .. or just call the doc and see .. before the apointment ..
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