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  1. Re: cervical changes in menopausal woman due to Methotrexate?

    Thanks Rose. I saw my gynecologist due to spotting and had several tests and that is when I found out about dramatic thinning of cervical wall. I had just had a negative pap smear in December so we...
  2. cervical changes in menopausal woman due to Methotrexate?

    Has anyone heard of Methotrexate causing changes to women's reproductive systems? I have been on Methotrexate since Dec. 2015 for maintenance. I have had radical changes to my cervix since being on...
  3. high potassium level caused by Methotrexate?

    I have been in remission a little over one year. I currently take 12.5mg of methotrexate once a week. I currently get lab work every 6 weeks. My most recent labs show a very high level of potassium....
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    Most of the time I can't smell. (It doesn't...

    Most of the time I can't smell. (It doesn't usually bother me except for when the lilacs or hyacinth are in bloom.) But just like someone else mentioned, I will suddenly smell something. Strangely,...
  5. Sticky: Specialist name: Dr. Rebecca Manno at Johns...

    Specialist name: Dr. Rebecca Manno at Johns Hopkins Vasculitis Center
    Location (Country/State/City): Baltimore, MD 21029
    Area of specialisation (e.g. Rheumy, Immunologist etc): Rheumatologist who...
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    I second the advice to get on a waiting list for...

    I second the advice to get on a waiting list for any open appointments. Also, maybe see if the doc that diagnosed you can put pressure on for a sooner appointment. Don't be afraid to be pushy. It's...
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    I was diagnosed May 2015. My rheum didn't use the...

    I was diagnosed May 2015. My rheum didn't use the term "limited GPA" but my involvement was confined to upper respiratory system. Prednisone made me feel better all over than I had in probably 30...
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    Diagnosed May 2015. Had 4 infusions of rituximab...

    Diagnosed May 2015. Had 4 infusions of rituximab (1 weekly for 4 weeks) in July 2015. Also treated at same time with high dosage Prednisone because there is a long period of time before you know if...
  9. I think it is probably a combination of many...

    I think it is probably a combination of many factors including genetics. I was seldom ill as a child except for tonsillitis and tonsillectomy at age 12. Not really any allergies to speak of. Maybe...
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    I know every case of Wegener's is different...

    I know every case of Wegener's is different but... I had a course of 4 weekly infusions of Rituxamab in July 2015 and was in remission as of Dec. 2015. (I started high dose Prednisone in early May as...
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    Thanks Annekat for your suggestion! I already...

    Thanks Annekat for your suggestion! I already take one 1mg (1,000mcg) tab folic acid each day. I had been told it was to avoid the mouth sores you might get with MTX but I hadn't heard about the hair...
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    Dirty Don, I also was mostly upper respiratory (a...

    Dirty Don, I also was mostly upper respiratory (a little lung involvement that was cleared up with prednisone and Rituximab). I was extremely fortunate in that I was diagnosed very quickly. Less than...
  13. Your symptoms are very similar to mine except my...

    Your symptoms are very similar to mine except my problems started very recently (December 2014). I was officially diagnosed in May and am on prednisone and will start rituximab infusions this Friday....
  14. Sister just diagnosed in another state and need info

    Hi, I'm really glad I found this site. My sister was diagnosed in June and has significant kidney impairment. Some days she gets dialysis, plasmapheresis, steroids, and or blood transfusions and some...
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