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Type: Posts; User: RiverJoy

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  1. Thread: Haircut

    by RiverJoy
    Replies
    12
    Views
    5,014

    Re: Haircut

    Yup...I cut my own too! I think I'll be continuing with this $65 savings in the future! It didn't turn out bad! lol!
    On a side note...(I was just catching up on other posts)...I did get COVID in...
  2. Replies
    4
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    1,806

    Re: PR3 Antibodies Elevated

    Hi Beautiful People!
    I've been meaning to pop in and post an update!
    Flashback to September...my Doctor told me they would continue to do my blood work every few months and watch my PR3 antibodies...
  3. Replies
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    1,806

    PR3 Antibodies Elevated

    Hi Everyone!
    Hoping one of you might be able to shed some light... :)
    I haven't been feeling well for about 5 weeks...pain that comes & goes. (this week no pain at all!)
    I had been to a walk-in...
  4. Replies
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    39,844

    Re: Hair Loss.....

    My situation was similar to GoldenJen....it was the prednisone that caused my hair to become brittle and break....I feel like I lost about half my hair...but maybe it wasn't that bad...just feels...
  5. Thread: Transplant

    by RiverJoy
    Replies
    282
    Views
    663,751

    Re: Transplant

    Just marked my calendar! Will be praying for you daily! Believing that surgery on the 19th is going to go super smooth and a quick recovery afterwards!!
  6. Replies
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    52,434

    Re: Second Opinion

    Hi Christine,
    I hope you were able to get an appointment for a second opinion. When my health started snowballing, after being in the hospital for two weeks they wanted to remove part of my lung,...
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    10,545

    Re: I love someone with Wegeners

    Hi Lynette,
    Welcome! I was extremely thankful as well when I stumbled across this forum. To find a community of people that understood what I was walking through meant a great deal! Will pray for...
  8. Replies
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    5,644

    Re: Wegener's Rash or Medication/Sun Related?

    Thank you Pete! I'll see if I can get my labs done in the next day or two!
  9. Replies
    3
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    5,644

    Wegener's Rash or Medication/Sun Related?

    Hi Everyone!
    At the end of June I went down to 2mg prednisone and yesterday went down to 1mg prednisone.
    I requested to have my bloodwork done about 4 weeks ago because I had a cold and my right...
  10. Replies
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    86,318

    Re: New to Wegener world

    Hi Cathy!
    Hang in there! We get it! Good days ahead!!
  11. Replies
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    52,674

    Re: Pred Taper Completed

    So happy for you Pete!
  12. Thread: First Flare?

    by RiverJoy
    Replies
    9
    Views
    20,958

    Re: First Flare?

    I so appreciate all the feedback everyone!
    Going to try the conditioner trick and biotin!
    Thanks again!
  13. Thread: First Flare?

    by RiverJoy
    Replies
    9
    Views
    20,958

    First Flare?

    So I was on a slow taper, finally down to 4mg prep and then I caught what appeared to be a little cold, nothing really at all.
    I woke up the next morning vomiting (alot) and a little dizzy...
  14. Replies
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    4,227

    Thank you Gilders for all the info! My ENT had...

    Thank you Gilders for all the info! My ENT had suggested a CROS hearing device. I will look into whether this is the same type of hearing aid you're referencing to see if it will help with the...
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    6,200

    Wow....you've been on a long journey! Thank you...

    Wow....you've been on a long journey! Thank you so much for sharing your experience. The info regarding your tapering does help me! Thank you! I'm going to continue with the slow taper...much...
  16. Replies
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    Hi Treesie! Hope all is going well with your...

    Hi Treesie!
    Hope all is going well with your Prednisone taper! I was wondering how your doctor first started tapering you off? My doctor keeps me on a dosage for about 4 weeks, then brings me down...
  17. Replies
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    4,227

    Thank you John & Tom! I appreciate the input! ...

    Thank you John & Tom! I appreciate the input! Looking forward to being off Prednisone hopefully by summer's end...and not looking forward to staying on Imuran....BUT very thankful there are...
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    Hello! I am new to the forum....I was diagnosed...

    Hello!
    I am new to the forum....I was diagnosed on April 24, 2017 after a 3 week hospital stay of doctor's not being able to identify the two abscesses in my lungs. Along with the month prior...
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