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Type: Posts; User: Onirin

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  1. Replies
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    Re: Retuxin infusion

    I have received 3 rounds of infusions (rounds are 2 visits each) but I normally dont feel too sick. When you say sick I'm thinking you mean nauseous or upset stomach and I did not have this. My...
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    Re: Not a diagnosis I expected

    Hi Jim. A lot of your symptoms were similar to mine. I had intense headaches all the time that would not go away unless I was on prednisone. I was also going to the bathroom every 15 min but they...
  3. Re: How many got the Wegners or GPA Dx without a bx?

    ENT tested me for GPA and came back negative.
    Admitted to hospital and they tested me for GPA, Negative.
    After cross testing and a lung biospsy I finally tested positive for GPA.

    My doctor says...
  4. Thread: Newly Diagnosed

    by Onirin
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    Re: Newly Diagnosed

    I'm so happy to hear the rituxan is working for you. It did wonders for me. I had my first dose in the hospital. It takes about 4 weeks to kick in but when it does I felt amazing. I had my first...
  5. Re: Journey to being diagnosed, treated, and already first flare up

    For me I had lots of little joint problems to start off with. I’m fairly young so I was embarrassed and thought I was just “out of shape” but looking back it was probably the start of GPA. Later I...
  6. Re: Journey to being diagnosed, treated, and already first flare up

    Thank you everyone for reading and your encouraging words.

    For those that are curious I live in southern California.

    At the moment I am pretty happy with my rheumatologist. There have been...
  7. Journey to being diagnosed, treated, and already first flare up

    Hello! I have been reading the forums a while and now would like to share my experience with GPA which started in September 2018 at the age of 32. My family compares the ordeal to an episode of...
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