Search:

I asked Carter what the best present was that Santa brought, he said " My best present was that I didn't have to take my pred. today."

They put Carter to sleep.

Carter had a kidney and sinus biopsy to confirm WG. Funny they both came out negitive, but he definately has WG. He did have to lay flat for a few hours, but he wasn't in any pain. Although his...

Thanks, i will.

I will keep everyone updated on this wierd taper. I will also keep a log for the doctor. We see them (kid dr. and rhummy) in 3 weeks when we go for another IVIG. Hopefully his body doesn't go crazy,...

Elephant, I'm glad you have at least heard of alternating, but I thought it seemed different than what I have read here. Maybe its because he is so young, or been on it so long???

Sangye...Carter has been on 25mg since Nov. 15. He has reduced 5mg a month until now.

I just got this tappering off pred. schedule. Its a long one...
Day 1......25mg (current dose) day 12......10mg
2......20mg 13......25mg
3......15mg...

I just recieved a phone call from a manager at Disneyland. She was horrified at our treatment and extended our families (7 of us, plus my mom who was with us) passports for 6 months plus gave us 8...

my drs. said no Ibuprofen for Carter, but I think its because of his kidneys, but tylenol is ok to take.

Carters dr. said his immunoglobin is very low, it was at 400. I guess it can lower when you get cytoxan. With cancer pts it usually lowers to 500.( I am not sure what normal levels are.) I looked up...

Carter goes tomorrow for IVIG. Has anyone else done this or needed it?

I hope they feel horrible, i was thinking about contacting a lawyer this morning. I can't believe that they could be so horrible. My son cried all night, he didn't even want to go trick or treating....

We woke up early this morning to be at Disneyland for Halloween. We have only beenable to use our passes once this year. Since Carters diagoses in May, we haven't done much of anything as a family....

Hi MyerscoughClan,

We are neighbors, my 8 year old son was dignosed in May this year. We live in Eastvale (Corona, CA). Where in Orange County are you? What hospital is your daughter treated at?...

I don't have any health food stores aroung me, does GNC carry Aloe gel? Is there a specific brand I want to look for? I am also going to look for a vestibular PT ( for me, not Carter) I have suffered...

Cater got up this morning complaining of stomach pain again. Could it be from cellcept still in his body, or now the myforic? But he has only had 2 pills? I don't know what to do , hes got to be able...

Sangye, Sorry im still learning...is myforic a chemo too?

Carter got terriible diarrhea and stomach cramps immediately, with the starter dose of 250 mg 2x a day. He couldn't go to school because he spent the day in the bathroom doubled over. The switched...

I can't find any info here about myforic? Carter had a reaction to Cellcept ( of course he did, my poor baby reacts to everything) so the just gave me Myforic to try. They are starting him on 180 mg...

[

I also don't understand why they thought they needed rtx (a big gun) but are now settling for Cellcept (a small gun).

Sangye, All Carters docs are reviewing all his labs and are deciding...

They pretreated him with benadryll. They didn't give him pred, because he had 30mg before he went in. Once he reacted, they stopped meds, gave him more benadryll and solumedral.
They want to watch...

They had to stop Carters IV, his throat started to close up. They opted not to continue so are watching him for an hour, then sending him home. I know reactions are common to this, but this seems...

Carter will have his first dose of Rtx tomorrow. They said they would also start him on Imuran (not sure of spelling). They gave me some info on it and he is taking alot of the meds that they say not...

My son is 8, going on 21. he was dignosed in May this year.