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I tried nasal irrigation a couple of times, and had the same result both times. The saline got stuck up in my sinuses and couldn't get out. I felt like I'd been swimming in the ocean in storm surf!...

Andrew, I had a big breakout of the red blisters again last week. When I'm on Prednisone, I don't get them. :confused:

Sangye, yes I have heard about false negatives. A friend of mine online is married to a guy who has an autoimmune disease I can't remember the name of. It took repetitive blood tests and three...

Hey Jack! The biopsy came back negative. :confused: That's not especially good news for me, as there has to be an explanation for all these symptoms. After the first of the year, I will return to...

Oh yes, I was sent to him by the ENT to hopefully get a final diagnosis. He won't put me on Cytoxan until he confirms it, but he sure has thrown a lot of Prednisone my way. He didn't do that this...

Well, once again my blood work and urinalysis came back negative, but based on the symptoms I've had and the fact that many of them react only to Prednisone, the Rheumy wants to go forward with the...

Thanks, Carol. I've actually already employed most of your tactics. My sheets are all 100% cotton, as is my nightwear. What we have on the bed is a bit different from you. I have a 100% silk...

Andrew, would that I could do without the sleep! The problem I have is that I have another autoimmune disorder called fibromyalgia, and sleep is integral to my feeling good. Without sleep, the pain...

I asked this question elsewhere, but I think it got overlooked. Can any of your Weggie veterans tell me if brain fog is a part of this? Especially when I'm not on Prednisone, I truly feel like I'm...

LOL!! Actually, I think I qualify to be the Jack o' Lantern this year. :D

"Pred-head" - I like it! :D Yeah, maybe our round faces are more huggable!

I have a question about brain fog. Do you ever feel like you can hardly remember the past week or day or month?

Andrew, at this point, all I can do is offer you my condolences on your diagnosis, and good luck with your treatment. I still haven't been officially diagnosed, but have many of the symptoms. My...

Not to hijack the thread, but I have a question about what constitutes a negative ANCA. Does that mean the actual ANCA reading is -(minus) [number], or does it mean that the reading is within normal...

Today was a bad day for me, feeling wise. I felt horrible. My boss told me that I look horrible too. :( She thought I had been rubbing my eyes because they're red and irritated from...

Oh geez, where I live it's a five second rule. I guess people here are more impatient or something. :D

LOL, Andrew I am sure the invisible man had a great laugh watching me pick up my pills. Thankfully, the floor was freshly cleaned. :D

I definitely feel flushed on Prednisone.

Andrew, your fumbling comment reminds me of what I did a few days ago. I was getting my meds ready to take, fumbled my bottle of blood pressure...

I got in such a rush, I forgot to post that he's also re-running the blood tests and ordered a urine test (which the other doctor didn't do). So I'll get that done after I get off work today, and...

Not much time to post, as I was late to work due to doctor's appointment. Rheumy put me on Prednisone, 40 mg. per day, biopsy is one week from today, and I see him again (the Rheumy) in two weeks. ...

:D Wishing you many, many more to come!

Today I got to thinking and decided to call the Rheumy's office to make sure he treats W.G. What a shock it would have been to wait all this time and find out that he doesn't treat it. Whew! He...

Randy, God bless you!

John, I'm so sorry for all you've gone through. :(

Andrew, you're quite right. Those lesions do have a way of going away rather quickly. One day it's a dark red blister, and the next day, it's gone! They do seem to come in waves, so I'm hoping...

My long-awaited appointment with the Rheumy is two days away. I've gotten copies of all my relevant medical records and have written down my list of symptoms.

After having lesions on my nose all...