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Type: Posts; User: NatriceRomeo

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    Re: Covid vaccins and WG

    I received the Pfizer vaccine yesterday. So far everything is going well. I have a sore arm and a headache.
    Because I was infected with Covid-Iím very behind on my Rituxin treatment. I do not know...
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    Re: Covid vaccins and WG

    Thank you for all your kind thoughts! I still am suffering from shortness of breath. Itís really interesting on calls (I am a paramedic & I have gone back to work). I am unsure how much of it is...
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    Re: New member diagnosed in January 2020

    Oh my goodness! I am so pleased you got better. Itís scary thinking that so many people whom get as sick as you did, do not recover well. Iím sorry you got the diagnosis but happy you found us! ...
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    Re: Celebrate how far we have come!

    Happy thanksgiving! I hope each and everyone of you are staying healthy and happy!
    Natty


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    Re: Covid vaccins and WG

    So, I work in healthcare. I was Covid tested the week before because I had sinus issues and it was negative. I went on antibiotics. On the 6th I woke up and lost all sense of smell. I contacted my...
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    Re: Covid vaccins and WG

    I was diagnosed with Covid on the 6th. It has not been kind to me. I have had bilateral pneumonia, nausea and vomiting-still. That being said, I am worried about an mRNA vaccine. It just does not...
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    Re: Your Thoughts on Dying.

    DrZ,
    Thank you for reviving this topic. I looked through all the posts, and it is difficult to comprehend the characters and people whom seem so alive... and whom arenít with us anymore. It makes...
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    Re: Coping with stress on current pandemic

    I recently watched a podcast with Dr Z and Dr Oriff, director of vaccine education at Philadelphia childrenís hospital. He said in order for herd immunity to happen with a vaccine over 2/3 of the...
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    Re: Coping with stress on current pandemic

    Hi everyone,
    I am still working as a paramedic in St Louis. I was really worried when the pandemic came here. The fire dept I work for insists we wear N100 on every call and we wear simple masks...
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    Re: pberggren memorial thread

    Iím so so sad to read this. My heart is heavy for you, Alyssa and for Philís mommy. I hope she finds peace. You are all in my heart and in my thoughts.
    Natrice


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    Re: New to Wegener's, new to the forum

    Oh my goodness! Susan, you have been put through the ringer! I say quite often Wegeners is not for the faint of heart, hearing your story reaffirms my belief. I know you are new to this diagnosis but...
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    Re: Happy Birthdays Thread

    Happy belated birthday ladies! Hope you had a great day!
    Natty


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    Re: Coronavirus and GPA

    Happy birthday!
    What country do you live in?


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    Re: Coronavirus and GPA

    Hi everyone,
    I work in healthcare. Iím a paramedic for a county in St Louis Missouri. I also am on Rituxin & this virus of course has been on the forefront of my mind. Iím due in April for a Rituxin...
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    Re: Transplant

    Hi gliders,
    So glad your kidney function has stabilised! It is a relief! Hereís hoping you continue to grow stronger every day!
    Nattt


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    Re: Recent Diagnosis

    Sajo,
    Hope you are starting to feel better. Hopefully you have better luck on cellcept than I did! I find tapering on prednisone just plain sucks!
    Natty


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    Re: Not a diagnosis I expected

    Hi Jim,
    Sorry you got this diagnosis but I totally understand that there is also relief knowing what is wrong. I feel like GPA is a terrible disease but when itís under some sort of control you can...
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    Re: New Here - Dx question

    Hi Weglee,
    Your father has vasculitis? Thatís interesting! There has been several debates about vasculitis possibly being genetic.
    First off, when I was first diagnosed I was placed on methotrexate...
  19. Thread: Here I go

    by NatriceRomeo
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    Re: Here I go

    Hi annemarie,

    When I was first diagnosed I was cANCA positive. For the past 4-5 years-I have been pANCA positive. My Dr considers it still GPA.
    I hope you find a diagnosis soon & start feeling...
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    Re: My story...

    Hi Smashing,
    I concur with everyone else. It sounds like you are treating your symptoms & though that may sounds great, there is still damage being done to your body which can be permanent.
    Good...
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    Re: My journey so far

    Hi Karen,
    Welcome to the forum. I am sorry and disappointed in your experience with Drs. I have had my share of ignorance from them myself. At least now you have a diagnosis and can work on feeling...
  22. Re: Mal Brown. Diagnosed 10 years ago but new to the forum

    Hi Mel,
    I was diagnosed in Sydney but have since moved abroad. I am sorry that you have felt alone in this journey but you are not! I have said before this disease is not for the faint of heart. I...
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    Re: New, in Palm Springs

    Hi Jan,
    I do hope you are feeling better now. I know it can be overwhelming but us people diagnosed with GPA are hard core and never give up. You got this! We all are pulling for you!
    Natty

    ...
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    Re: Split decision on diagnosis

    Aaron,
    I concur with everyone here encouraging you to seek a second opinion from someone whom has experience with GPA. I would also encourage you to see an ENT with experience in this disease. I...
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    Re: In process of being diagnosed

    Hi Lea,
    Welcome to the forum! I too had been diagnosed as ďlimited GPAĒ, this was 23 years ago. The thought being that no major organs are affected. I even had one Dr say that all the tests that...
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