I started with a sinus problem, and then my left ear started clogging. I saw three doctors about my sinus problem and they gave me the typical medications but nothing worked - when I saw my 4th...
Type: Posts; User: Lea
I started with a sinus problem, and then my left ear started clogging. I saw three doctors about my sinus problem and they gave me the typical medications but nothing worked - when I saw my 4th...
I am 58 years-old, and about to retire - high school teacher. Mine started in August of 2019, and I considered myself very healthy. I was training for a marathon and I did weights. I had/have...
Pete, what made you go from methotrexate to rtx? This is my second year with gpa, and I am not taking Prednisone anymore (started with 60 mg). I am still taking methotrexate (calcium, vitamin d,...
I use Budesonide in my nasal rinse. It was REALLY painful the first few times. It felt like brain freeze followed by a stinging and itchiness just under my scalp. It does seem to help a little and...
Hi Marsha,
I read you are going to Duke to get treatment. My rheumatologist is from Greenville, SC. My ENT referred me to him. A friend asked me if I wanted to see someone from Duke, but I have...
I was just diagnosed with GPA and one of my problems is my hearing loss. Would you mind giving an update on how you dealt with your hearing loss and how you are doing now after getting your hearing...
Thank you natty and I am glad to hear this. With students, even when I did not have GPA, I was always very careful. I guess I am being extra careful now.
Yes, I had this concern. I have not gotten the flu shot and I always get it every year. I am not even sure if I can get a flu shot with the new medication that I am taking. I will have to talk to...
Thank you Alysia. Yes, I read about "Limited GPA" and many agree with you; It is a wrong label to use, GPA is GPA. I think I am going to need a lot of advice since all this is new to me. I had...
[QUOTE=Pete;115614]@Lea
Thank you for your reply. I have read several of your posts and also other members posts and am amazed at how much people know about this condition and how they are...
I just registered as a member to this forum. I have spent since 10-2-19 trying to learn everything about this Wegener’s condition. Symptoms started in May, 2019. My doctors and other two doctors I...
Annekat, I have not read all your posts but I think they are very informative, and I hope to read them and learn a lot from you. Lea
I just registered as a member to this forum. I have spent this week trying to learn everything about this Wegeners condition. I read your thread with interest because it includes two people, one...