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  1. Thread: Marcy's story

    by Marcy
    Replies
    10
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    2,185

    hi Carol, I'm not sure what WG drug protocol...

    hi Carol,
    I'm not sure what WG drug protocol you're currently taking - but for me I am currently taking Methotrexate weekly and no pred. The methotrexate is very hard on your liver and therefore,...
  2. Thread: Trish

    by Marcy
    Replies
    10
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    5,096

    Trish, thanks for responding - has your treating...

    Trish,
    thanks for responding - has your treating doctor looked at your lungs? My shortness of breath has been caused by two factors combines, my tracheal stenosis which thankfully is minimal and the...
  3. Thread: WG in remission

    by Marcy
    Replies
    47
    Views
    9,787

    who was your ENT at CC? I used to see Dr. Lorenz,...

    who was your ENT at CC? I used to see Dr. Lorenz, he is a true expert in his field but unfortunately he is now out of the US working in Abu Dabi United Emeretts (sp?). I can't remember the name of...
  4. Thread: WG in remission

    by Marcy
    Replies
    47
    Views
    9,787

    just saw this thread and wanted to say that Dr....

    just saw this thread and wanted to say that Dr. Langford is my doctor at the clinic that cares for me and my WG. she is amazing!!!!!!!!!!!
    Marcy
  5. Thread: Trish

    by Marcy
    Replies
    10
    Views
    5,096

    Trish, I just read your post/story. It sounds as...

    Trish,
    I just read your post/story. It sounds as if you've had some real trials associated with your WG. I have questions.... where do you live? What treatment are you currently receiving for your...
  6. Thread: Sharing my joy

    by Marcy
    Replies
    3
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    1,273

    nicely done!

    nicely done!
  7. Replies
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    1,380

    link to vasculitis foundation website

    to those who haven't visited this site, it's helpful. It used to be strictly Wegeners but then expanded to include all vasculitis. There's a newsletter and information about others with the disease....
  8. Thread: Meet up

    by Marcy
    Replies
    13
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    3,402

    conference

    I'm new to this group but am wondering if any of you have heard of the vasculitis foundation? They have an annual conference every year, to my knowledge it's always in the U.S.. However, people...
  9. Thread: Hello out there!

    by Marcy
    Replies
    3
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    1,155

    wegeners on mystery diagnosis

    I just wanted to say that I did see that episode a few months ago. It was very interesting. Just as it is when it is featured on other shows like House.
    Marcy
  10. Replies
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    new to this forum

    hi all,
    I'm new to the group but just posted my WG story if you'd like to read it. I was diagnosed in April 2005 with WG effecting my lungs, trachea, ears, and sinuses. I'm 39 years old, married to...
  11. Thread: Marcy's story

    by Marcy
    Replies
    10
    Views
    2,185

    Marcy's story

    Well, here's my WG journey.... I was diagnosed in April 2005 with WG effecting my trachea, ears, nose, and lungs. Upon reflection I think I started having recognizable flares back in 1998, I just...
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