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  1. Thread: Wegners in ears

    by Pete
    Replies
    9
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    67

    Re: Wegners in ears

    Answer to your first question is yes. The answer to your second question is beyond my body of knowledge.

    Good luck!!
  2. Thread: Wegners in ears

    by Pete
    Replies
    9
    Views
    67

    Re: Wegners in ears

    BAHA=bone anchored hearing aid

    Rush Limbaugh wore them.
  3. Thread: Wegners in ears

    by Pete
    Replies
    9
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    67

    Re: Wegners in ears

    Hearing has been my most pronounced ongoing GPA issue. Before disease onset, I had tinnitus (high pitch squeal) and some hearing loss due to environmental causes (military and worked in steel mills...
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    Re: Possible GPA - nasal deformity

    Hi Rae,

    I donít have any experience with saddle nose deformity, but annekat and Alysia do. Hope they chime in soon.
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    Re: Coronavirus and GPA

    My wife and I got our second doses of Pfizer vaccine on 2/23. My wife had minimal reaction to it, but I had flu-like symptoms for about 24 hours. Feeling normal now. Next rtx is March 22.
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    Re: Covid vaccins and WG

    Update: Iím almost 48 hours past my second dose of Pfizer. I had some pronounced side effects yesterday ó fatigue (I took a two-hour nap yesterday afternoon and went to bed a couple hours early last...
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    Re: Covid vaccins and WG

    My wife and I got our second dose of Pfizer vaccine yesterday. Weíre so thankful to Ohio State University for the great process to schedule and administer these vaccines.

    If you have access to...
  8. Thread: Avacopan

    by Pete
    Replies
    16
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    2,066

    Re: Avacopan

    Looks like avacopan will be approved to treat ANCA Associated Vasculitis soon.
    ...
  9. Replies
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    Re: Coronavirus and GPA

    Cathy and I had our first doses of Pfizer two weeks ago. Second dose is next Tuesday. Dr Villa Forte wanted me to have covid vaccine at least three weeks before my next dose of rtx. Looks like Iíll...
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    Re: Flare up and Rituximab route questions

    My rtx infusions have been non events. The first one lasted about five hours and the rest around four. In addition to rtx, you will get a drug cocktail of solumedrol (steroid), benadryl, and tylenol...
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    Re: Coronavirus and GPA

    John S

    Iím just behind you. We get our second doses of Pfizer on 2/23. OSU has used MyChart to notify people of their eligibility for vaccination and to schedule appointments. Itís worked very...
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    Re: Coronavirus and GPA

    PattyL

    The first shot produced only the minimal injection site reaction. No fever, malaise, nothing. I get the second dose on 2/23. I hope I do better than I did with the second dose of shingrix...
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    Re: Coronavirus and GPA

    This morning, I have very minimal pain at the injection site ó pain is a 1 on a scale of 0-10.
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    Re: Coronavirus and GPA

    We just got home from getting our first dose of Pfizer vaccine. OSUís process was very organized. We were at the Schottenstein Center for about an hour. Second dose on 2/23.
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    Re: Coronavirus and GPA

    Just getting in under the wire. My first dose of COVID vaccine is scheduled for Tuesday with the second dose 3-4 weeks following. I have an rtx infusion on March 22, and doc wants three weeks between...
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    Re: New old guy on the block

    Well, here I am at 10 years post dx. Thankfully, thereís very little to report on the GPA front. Still off pred. Taking bactrim 3x weekly. Getting ready for either a 500 mg rtx in March or my COVID...
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    Re: Coronavirus and GPA

    drz

    Hereís what the study gave as participants:

    ďPatients with vasculitis in North America were invited to complete an online survey through the Vasculitis Patient‐Powered Research Network in...
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    Re: Coronavirus and GPA

    Interesting study...

    https://onlinelibrary.wiley.com/doi/10.1002/acr2.11204
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    Re: UTI and antibiotics after RTX infusion

    My creatinine while on bactrim is consistently in the 1.4-1.6 range. It's stable, and I feel well, so my docs (Villa Forte and the PCP) and I have agreed not to worry about it. My eGFR is...
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    Re: UTI and antibiotics after RTX infusion

    I take bactrim 3x weekly while on rtx (and every other immunosuppressant Iíve ever taken).
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    Re: Coronavirus and GPA

    Thought this might be helpful...

    https://www.washingtonpost.com/health/2020/12/15/moderna-vaccine-found-safe-effective/
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    Re: Coronavirus and GPA

    Masha

    Tell your hubby flattery will get him everywhere. 😂😂😂
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    Re: Coronavirus and GPA

    gilders

    I recovered completely from the fall and aftermath. My PCP and rheumy both said the kidney cysts were nothing to worry about. And they run in my family. All is good here. The kids and...
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    Re: Coronavirus and GPA

    A little more info regarding JohnS conversation with Dr Villa Forte. She called me at about 7:00 last night. So far, the vaccines are OK for us weggies. The trick is getting the shots timed around...
  25. Thread: Hair Loss.....

    by Pete
    Replies
    14
    Views
    6,934

    Re: Hair Loss.....

    Especially if youíre taking methotrexate, hair loss is a side effect. You can take folic acid to reduce hair loss.
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