Thanks Anne! Great information :)
Type: Posts; User: debhaz22
Thanks Anne! Great information :)
THANK YOU Rebekah! I would SO appreciate that!
Mary- no, I had never even heard of Wegener's before my diagnosis.
Hi Jakekell,
I'm looking around Tampa...
Hi all,
I will be moving to Florida in June and am hoping there are some of our Weggie "family" there so I will know someone! Anyone living there??
Thanks!
Deb :cool1:
We really should plan a time to all meet up there...
:thumbsup:
Hi all!
Just wondering who was planning on attending the Vasculitis Conference in June in Jacksonville, FL? I just signed up and would love to make a plan to meet as many forum members as I can...
Hi,
I was diagnosed in 3/2014 with GPA vasculitis (Wegener's). Now my Dr.'s are thinking I may also have RA. Has this happened with anyone else??? I've never heard of this before.
Thanks so...
Do you know where you will be staying? I'm not at all familiar with Jacksonville.
Thanks!
Anyone planning on attending this? I'd love to go.
Hi Dale,
I'm sorry you're coming out of remission, but it must have been a wonderful 4 years..., right?
How do you know when you're in remission? Is it only according to blood results?
Thanks!...
whew, thanks :)
Hi Mike,
question for you: when you're on Imuran do you HAVE to have the boosters of RTX?? My Dr. didn't mention this. Yet...
Thanks,
Deb (aka Bulldog :wink1: )
Hi Dale,
what happened when you "couldn't tolerate it"?
Thanks!
Thanks everyone for the replies. :)
Yes, he ran the blood test last month for the gene to see if I can be on Imuran. I guess I can!
Hi all,
Since April I've been on MTX (taken off due to side effects), then on CellCept. My Dr. took me off of the CellCept yesterday due to continuing "stomach issues". Tomorrow I start Imuran. ...
Hi all,
I had heard that if you are on chemo you CANNOT get "waxed" (eyebrows, legs...) because your skin is too sensitive. I don't see my Dr. for another month and don't want to call and bother...
Hi John,
Do you know what dose you started at? The only side effect was hiccups? Are you in remission?
THX :)
Hi,
Just back from JH and the Dr. doesn't like the effects the MTX is having on me, so he's starting me on CellCept. I know nothing about it, I don't even know anyone who is on it and that makes me...
Thanks everyone for the great tips! I really appreciate your guidance. I go back to JH on Tue. and I'll talk to Seo about it.
Deb H
(That's "Bulldog" to you Mike ;)
I eat tons of fruit, veggies, fiber and water. Never had a problem before this.
I am on MTX and Prednisone and ever since I started I've had problems with constipation,bloating... Does anyone else have this embarrassing issue going on?? Is it from the meds? Or the WG? I've...
This (the vertigo) is how this whole WG diagnosis came about for me. 2 years ago I had terrible vertigo, went to ENT's, Neurologists, had a brain scan done...Nothing was showing up. Finally I went...
Alysia,
you worded that PERFECTLY. At least we all have each other :)
Deb H
Hi all,
I started 20 mg Prednisone almost 3 weeks ago (along with 15 MTX once a week, Folic Acid and Bactrim)
This past week about 1-2 hours after I take the Prednisone I get TERRIBLE headaches...
Hi Lilly,
I was referring to this from yesterday:
."as I have upper abd bloating. My sister that I work part/time with, is very worried about this. I have never ever had any internal involvement...