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  1. Replies
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    Re: Imuran (Azathioprine) Users:

    Thanks for info.

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    Re: Imuran (Azathioprine) Users:

    My husband takes 200mg of immuran.would be very reluctant to reduce this medication.
    Has been taking since 2013.
    Does anyone else who is taking drug suffer leg and feet pain.
    Having nerve...
  3. Greetings from melbourne my husband took cyclo...

    Greetings from melbourne my husband took cyclo for nearly a year in 2011 didnt put him in remission just made him sicker your post has reminded me of the importance of regular urine checkups

    Sent...
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    Excellent take care and rest😊 Sent from my...

    Excellent take care and rest😊

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    Please seek medical advice if pain is totally...

    Please seek medical advice if pain is totally unbearable

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    Ok , could you go to hosp emergency not good...

    Ok , could you go to hosp emergency not good being in such pain ,have you tried warm bath

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    Have you been to doc to discuss your pain levels...

    Have you been to doc to discuss your pain levels

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    Im on aza 175MG .Had rituxan x4 in 2012 in...

    Im on aza 175MG .Had rituxan x4 in 2012 in remission after 3 months havent needed any more since have been on aza since remission,talked to rhem last week will be on aza for life but can reduce...
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    hi take care yes it is hard working my husband...

    hi take care yes it is hard working my husband has wegs and works fulltime I admire hes strength try and rest as much as possible and vent whenever you can to anyone who will listen, as a carer and...
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    dennis cortisone has been reduced 0.5 monthly,...

    dennis cortisone has been reduced 0.5 monthly, hes currently on 7mg, he takes Fosamax as well crissie
  11. Welcome, my husband has Wegs myself Lupus my...

    Welcome, my husband has Wegs myself Lupus my mother Sjogrens this site is invaluable, brilliant support and information , wish it had of been around 25 years ago when I was a naive 17 year old dx...
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    Hi Mary, My husband has wegs. He is in...

    Hi Mary,
    My husband has wegs. He is in remission presently but he takes 7.5 of cortisone , from what I rread i think its this drug that makes him sweat he also finds it annoying has to take a...
  13. Thread: immuran

    by dennis2512
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    immuran

    My husband is taking 150mg of immuran a day. Is this a large dose. He is in remision since december. Just got a few concerns about side effects. Any advice would be appreciated. crissie
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    welcome, this site has given me alot of comfort...

    welcome, this site has given me alot of comfort during my husbands journey with this disease. crissie and dennis hohenberger
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    hi, yes the butterfly rash is discoid lupus which...

    hi, yes the butterfly rash is discoid lupus which I i was dx with at 16. My husband dennis has wegs both autoimmune diseases. We both suffer similiar symptoms aches and pains but dennis has upper...
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    hi my name is crissie. Im the supportive wife of ...

    hi my name is crissie. Im the supportive wife of dennis wegs patient.. We are pretty excited today, yest told by hes specialist rhemu that hes finally in remission after 15 months of treatment.4...
  17. welcome this forum has been great for me. my...

    welcome this forum has been great for me. my husband dx aug 2011. unfortunatly ctx didnt help my husband but he start rtx 2 weeks ago, soo far hes only symptom is muscle weakness which has effected...
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    Well dennis finally got approval for mebthera...

    Well dennis finally got approval for mebthera from hosp treatment started last thurs. Only side effect soo far is sore lower back hasnt been able to lie flat for 6 days. 2nd treatment tomorrow. Am...
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    hi my husbands back was aching all the time on...

    hi my husbands back was aching all the time on ctx he has been off it for 4 weeks waiting for approval for rtx asap from public hosp here in melbourne.
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    hi my husband has wegs welive in melbourne...

    hi my husband has wegs welive in melbourne australia being treated at boxhill hospital presently. ctx hasnt worked soo docs are applying for rtx now blood tests 2nd weekly hes wcc now 4.4. we can...
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    yes it has given me hope for my husband

    yes it has given me hope for my husband
  22. hi im from melbourne. I was dx in august 2011. im...

    hi im from melbourne. I was dx in august 2011. im also on cyclophosphamide and pred. disease affected my lungs no kidneys issues as yet. Happy New Year
  23. thanks for all this info husband dx in aug on...

    thanks for all this info husband dx in aug on same meds hes not feeling well no support at all in australia i only have this forum frustrating he is 49 my name crissie email add [email protected]
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    hi was dx at the same time this year live in...

    hi was dx at the same time this year live in australia. im taking prednisolone and cyclophosmide bactrim nexium foxamax vit d and calcium. when did you notice you felt unwell do you get blocked nose...
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    reading this has made me feel alot more positive...

    reading this has made me feel alot more positive about wg was diagnosed 4 weeks ago and its alot to absorb.
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