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Type: Posts; User: txrepub4God

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  1. Replies
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    I'm here - haven't been online (well, on social...

    I'm here - haven't been online (well, on social media-type sites) much any more. Got off Facebook this past summer because of the constant negativity us human beings share online these days. Plus,...
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    Question About High Temps & Illnesses

    At what point does a high body temperature send you to the ER when you're sick? I just finished another 10-day course of antibiotics for a UTI/colonization of E.coli in my bladder, which I've had for...
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    Thanks for checking in on me. I've been pretty...

    Thanks for checking in on me. I've been pretty ill since I began the Rituxan. I've had so many doctor visits - gastroenterologist, rheumy, primary care doc, urologist, infectious disease specialist,...
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    Poll: How do you get to a poll? I can't find anything...

    How do you get to a poll? I can't find anything it'll let me click on to open the poll.
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    Poll: Diagnosed with Wegs in March 2015. Originally...

    Diagnosed with Wegs in March 2015. Originally took cyclophosphamide & steroids for 6 months, but got critically ill from it. Imuran next, had extreme nausea & stopped after 6 weeks. Got Rituxan in...
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    We bought out home almost 2 years ago; it was...

    We bought out home almost 2 years ago; it was built in 1957 but newly remodeled. However, after moving in, we knew immediately that the plumbing was probably as old as the home, as we could see rust...
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    Poll: Mine is A+, which makes sense because I always...

    Mine is A+, which makes sense because I always had to have the highest grades in school. 😇
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    Thanks to all for replying with your Rituxan...

    Thanks to all for replying with your Rituxan experiences. I have been extremely ill since finishing my 4 IV infusions of the drug. It has been miserable. I had several days of very swollen lymph...
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    I also just finished my first round of Rituxan (4...

    I also just finished my first round of Rituxan (4 infusions over 4 weeks), and have been sick ever since. Right now I'm fighting something major, and even though my rheumy gave me a 5-day course of...
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    Social Security Disability Fight

    How many Americans in here filed for disability and were approved? Any in Texas specifically? I filed immediately after having to quit in December 2012, and a few days ago I received a letter from...
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    Gab122 - that is wonderful! Glad to know there...

    Gab122 - that is wonderful! Glad to know there are other women that have similar values in here that also understand life with Wegs. May God bless you greatly! 🙏🏻
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    Did Rituxan NOT Work for You?

    I was diagnosed with Wegs in March 2015, spent 6 months on Cytoxan & prednisone, got sick & almost died in December from Cytoxan side effects, tried Imuran for 6 weeks in February this year but...
  13. Debra, I think the doctor has to order a full...

    Debra, I think the doctor has to order a full ANCA panel in order for the PR3 & MPO to be tested. If he just ordered a cANCA, that's all they'll test. They probably wouldn't be able to add-on the...
  14. My ex-rheumy (just fired her for almost killing...

    My ex-rheumy (just fired her for almost killing me about a month ago) would always order lab tests every month on my PR3, and every few months would test the ANCA panel. I have had one positive...
  15. My rheumatologist didn't change anything when she...

    My rheumatologist didn't change anything when she saw that my PR3 wasn't going down or getting anywhere close to a normal level. She just used the monthly PR3 test to see how effective the current...
  16. My ANCAs have been checked probably 5 times in...

    My ANCAs have been checked probably 5 times in the past 2 years - but I requested (and my rheumy agreed) to have my PR3s checked every single month with all my other labs. I think watching the PR3...
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    Wow. Just, wow. Trust me, I made sure my rheumy...

    Wow. Just, wow. Trust me, I made sure my rheumy was testing my PR3 every month during my labs. I've had my ANCA panel run probably 5 times, and only once did the cANCA show positive. However,...
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    "Family Dr. said he thinks the Wegs. is there but...

    "Family Dr. said he thinks the Wegs. is there but reluctant to put me through the infusion process if the Rheumy doesn't think it's needed." This kind of thinking from a specialist is what caused me...
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    I am a pain management patient that is 100%...

    I am a pain management patient that is 100% supportive of people taking pain medications when they have legitimate medical reasons to take them. I have degenerative disk disease in my low back and...
  20. Thread: Very Sick

    by txrepub4God
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    4,367

    I don't want to sound harsh at all, because I...

    I don't want to sound harsh at all, because I never want to question the health decisions other WG patients make for themselves. However, you seem to have a ton of the symptoms that are pointing to...
  21. Thread: I'm HOME!

    by txrepub4God
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    3,243

    Gary, no, he's deploying in about 4 months. He's...

    Gary, no, he's deploying in about 4 months. He's still here for now.
  22. Thread: I'm HOME!

    by txrepub4God
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    3,243

    I can definitely tell that the bladder isn't 100%...

    I can definitely tell that the bladder isn't 100% healed, because I still have the urgency & the second it hits I better run. ��. Plus, the Urelle (bladder numbing med) wasn't going to be ready until...
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    My stepdaughter is 11 years old, and I undetstand...

    My stepdaughter is 11 years old, and I undetstand you wanting to keep her informed and reassure her at the same time. We try to explain things to Grace in the simplest possible way, so that she...
  24. Thread: I'm HOME!

    by txrepub4God
    Replies
    9
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    3,243

    I'm HOME!

    Howdy from my very own soft comfy bed with my fat happy cuddly dogs in my own quiet house. I finally got discharged yesterday afternoon. They held me over an extra night because my bowels have...
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    Pete, I had researched the Imuran, since I knew I...

    Pete, I had researched the Imuran, since I knew I was only going to be on Cytoxin 6 months. That's when I read about the TMPT genetic blood test. I'm the one that told my rheumy that we needed to run...
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