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Hi Terry

I was diagnosed at 31 with a ten year old and twin 7 year olds. I know exactly how you feel. I am 37 now and still on methotrexate but i definitely feel like I am in the best shape of...

Hi Victoria. Yeah I have been on meds a long time. I only have one kidney so they want to keep me on the 20 mg of methotrexate to lower the chances of a relapse and it showing up my kidney next...

Hi Victoria,

I'm 37 and was 31 when I started the cytoxan and have been on the methotrexate for five years now. I still have a lot of hair, It seems like there is a lot in my brush and on my...

Hi Michelle - I love your picture of Kermit. Can't help but smile when you look at that gorgeous face! haha.

Kathy - sounds like you live a beautiful place. My husband and I talk about when we...

Latty,

I would call the Vasculitis Foundation. When I first got diagnosed I called there and they sent me a ton of information to read and they also have contacts in your area that you can call...

Hi Kathy. Thanks for your post. It was great hearing from you. That is so cool that you have twins. Are they fraternal or identical? I forgot to mention that I am also a twin. I have a fraternal twin...

Hi Debra,

Maybe we can get together sometime. Do you go to any group meetings or anything? My doctor tried to start one in Pittsburgh and there were only like three people there. I see Dr....

ArlaMo - wow girl you are super mom!! You sound like you have a good attitude and I'm sure you will continue to do well (especially since you are seeing Dr. K)

Anne - my eyelid now is also more...

Hi to all my fellow weggies. My name is Shannon and I'm 37 years old. I have been married to Greg for the past 17 years. We have three girls. A 16 year old and identical twin girls who just turned 13...

hi Anne. My brother who always goes to my appointments in Cleveland and met him said that if this all goes sideways on me someday we are flying to Utah to see that southern guy with his free air...

Dr. K is awesome! I saw him back in 2007 when I went to Cleveland for my second opinion. He spent an hour and a half with me my first appt. and called me often to update me on their review of my...