My Rheumy offered it just last week at a follow up and I am scheduled to receive it this Friday. This is at MUSC where most of my doctors are. I’ll update once I receive it because I too had a flare...
Type: Posts; User: Ashley37
My Rheumy offered it just last week at a follow up and I am scheduled to receive it this Friday. This is at MUSC where most of my doctors are. I’ll update once I receive it because I too had a flare...
Update: I’m about to get the evushield…spell check that one for me. Then my next round of Rituxan (#2 treatment) is next week. Since this all started I have since been diagnosed with rheumatoid...
My Rheumy is at MUSC Mt Pleasant. I saw her last Thursday and she strongly recommended I get it. They called me the next day and said I’m scheduled to receive it on the 20th!
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Pete, they didn’t give me the normal cocktail of meds that I’ve read to be standard. Instead I received 400mg Tylenol and a 50mg Benadryl both orally. The doctor and the nurse said it was odd that I...
Hi everyone…. Question….
Have any of you had vision issues after Rituxan? I already had peripheral issues in one eye. Now my vision is having a hard time focusing. I can focus fine one second and...
drz Yes, precisely why I chose the place. Everyone was very explicit about one big thing…once the drip started, if I felt different in any way then when I walked in, I needed to tell them. I was...
Update: it was a long non event for the most part. Had a slight throat closing reaction 30 mins in or so and that was addressed with Benadryl. After waiting for that to chill on out, the rest of it...
Welcome jrslim !
It’s a weird land of things when you find out you have Granulomatosis with Polyangitis or Wegeners…. Whichever you chose to go by. It can feel overwhelming for sure. I can say...
Hey y’all! Hope all of my weggies are resting well. Tomorrow is my first infusion. Can’t say I’m too nervous. I’m usually pretty calm. Expecting a non-event.
Also, I have a question… anyone have...
Hi Ana banana!
Welcome to the group! I find a lot of comfort in this forum, and even more knowledge. Sounds like the GPA may be smoldering again if the nose bleeds have started back. Hoping that’s...
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My GPA started with sinus involvement. There was a lot of sinus pressure like an infection. I woke almost every morning with the remnants of a bloody...
My symptoms are basically that my ears and nose feel stuffed up all the time and it feels like a lot of effort to swallow. I've had a bit of vertigo and every night I jolt awake several times while...
Biggest question to all:
How careful are we all needing to be while on Rituxin? I am a homemaker and am fortunate in that regard. However with the holidays upcoming we have one or two who would...
DRZ, I’ve read many of your posts as well and have learned a great deal. I appreciate it.
The septum was the beginning of it. It is now at 7cm. My sinuses are basically a train wreck. However, by...
Pete, you are correct Medical University of South Carolina. I am here in Columbia, SC. MUSC has been excellent with their care.
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Newbie…. I don’t know that I have ever felt more like a newbie about anything in my life. Ironically, here I am truly a humbled newbie. Go figure.
A small bit about myself, a prelude if you will:...
Hi all, I’m new still. I will do my intro shortly in the correct spot. However, I felt the need to chime in. This idea for Dr. VF is terrific! For myself, I wish I was given a forewarning of the...