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    Re: Happy Birthdays Thread

    Happy Birthday annekat and thanks for being with us all the way, sharing your wisdom and experience, being such a sweet and kind friend. We love you :wub:

    May you have a wonderful day, a long...
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    Re: Prednisone Reduction

    Sorry about the flare Pete and about your wife's disease. Stress is a triger for flares. Sending prayers for both of you. Please update us.
  3. Thread: Flare?

    by Alysia
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    Re: Flare?

    If it's indeed a flare then the pred will make the difference, if the dose is enough. How much did he prescribe ?
    Only in 2 flares my blood tests were not normal.
  4. Re: Wegeners/GPA for 41 years - Transplant for 25 - Having a Relapse

    Welcome to the family, Kim. Your story is amazing and can give hope to many. I tag gilders who had kidney transplant few months ago. I guess he will be glad to read your story.

    If you get rtx...
  5. Thread: My GPA story

    by Alysia
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    Re: My GPA story

    Welcome to the family, Rosie. Thank you for sharing your journey. Thank God they diagnosed you on time.

    As for rtx, there is a protocol of how it should be delievered, first and second time. 2...
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    Re: High calcium in urine

    Maybe your bones are strong because of the many stairways (how many ? I forgot) that you climbe daily on your way to work and back :thumbsup:
  7. Re: new member with question regarding remission

    Welcome to the forum, tac.
    During the first year of my wg, the C-anca came back positive. I searched this issue back then, and found that positive C-anca apears mostly in Crohns' and in wg. You...
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    Re: Azathioprine - Mycophenolate mofetil

    If it seems that cellcept is not stopping the wg activity, I would ask to switch to rtx.
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    Re: High calcium in urine

    Thank you. I wonder, if you stop taking the calcium pills how do you get enough calcium ? The endocrinologist said I need 1000mg per day. That's A LOT.
    I've stopped the calcium pills for one month...
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    Re: High calcium in urine

    Thank you. After reading your comnent I checked with my dr. My parathyroid was checked and is ok
  11. Thread: Transplant

    by Alysia
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    Re: Transplant

    Thanks for the update, Pete. We are happy with every percent of improvement. Take good care of yourself.
    I keep you in my thoughts and prayers and I am looking forward for more updates.
  12. Thread: Transplant

    by Alysia
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    Re: Transplant

    Can it be related to the amount of pred that you take ? Or to stress because of the decline in the numbers ?

    May your numbers be higher, May your kidney behave good, May your days feel good, May...
  13. Thread: Transplant

    by Alysia
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    Re: Transplant

    So sorry the numbers declined again. Thank you for the update.

    I wonder, when the numbers are down do you also feel a change or is it only the numbers which tell about it ?


    Stay strong. We...
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    Re: High calcium in urine

    An update: the calcium in my urine of 24 hours collection has continued to be extremly high, now it came back 432. The norm is no more then 250.

    My endocrinologist said that the high calcium in...
  15. Thread: 20 year old son

    by Alysia
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    Re: 20 year old son

    Any updates yet ?

    Did they check his C-anca and Pr3 ? Is he anca positive ? For me one of the first signs of a flare is when pr3 becomes above the norm.

    Sending prayers.

    שבת שלום
  16. Thread: 20 year old son

    by Alysia
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    Re: 20 year old son

    So sorry about his headaches and night sweats. I am glad they are going to check his head.
    Night sweats can be an indication to wg activity. But can also be related to some virus or infection. How...
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    Re: Happy Birthdays Thread

    Happy Birthday in heaven to my beautiful @pberggren1 and to our beautiful Barbara N
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    Re: pberggren memorial thread

    Today, July 7 is my sweetie's birthday; I wrote to him:

    Happy Birthday in heaven, sweetie,


    "If you love until it hurts, there can be no more hurt, only more love" (St. Mother theresa).

    ...
  19. Thread: Donations

    by Alysia
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    Re: Donations

    Funny, my post went twice, one for me and one for my sweetie :thumbsup:
  20. Thread: Donations

    by Alysia
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    Re: Donations

    It is already pberggren1 's birthday in Australia.... and sure in heaven, so celebrating :hug3:

    Thank you so much, andrew for keeping the forum going and doing such a great work, mostly on your...
  21. Thread: Donations

    by Alysia
    Replies
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    Re: Donations

    It is already pberggren1 's birthday in Australia.... and sure in heaven, so celebrating :hug3:

    Thank you so much, andrew for keeping the forum going and doing such a great work, mostly on your...
  22. Thread: Transplant

    by Alysia
    Replies
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    Re: Transplant

    Thanks for the update. I am so glad that the kidney's numbers are better after all. I wonder if the small fluctuations are not a natural mistake of scales in the lab. I think that with some tests it...
  23. Thread: 20 year old son

    by Alysia
    Replies
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    15,641

    Re: 20 year old son

    Hi, Nice to see you around, although we can guess that when you are not, it might mean that Yosef is doing good, which is great.

    Congratulations for his wedding and many blessings.

    Each flare...
  24. Thread: Transplant

    by Alysia
    Replies
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    23,434

    Re: Transplant

    I've started to be worried about gilders. His last update is June 19. He usually comes to update more often, right ? Praying..
  25. Thread: Transplant

    by Alysia
    Replies
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    Re: Transplant

    Keeping you in my thoughts and prayers, Pete.
    I hope the fluctuations in the kidneys functions are not significant and that your docs know how to treat it. Please update us when you can.
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