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  1. Replies
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    Re: Happy Birthdays Thread

    Thanks, Pete! That means a lot to me. I hope your health issues are leveling out in a favorable way and things can get back to something like normal for you. Cheers!

    Sent from my MotoE2(4G-LTE)...
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    Re: Happy Birthdays Thread

    Thank you so much, Alysia, for the special birthday wishes! The song and video are so cute, I will try to save them for another person's birthday. My birthday on the west coast starts in about 2.5...
  3. Thread: Transplant

    by annekat
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    Re: Transplant

    That is wonderful news, Pete! I'm looking forward to more excellent results posted in the future.

    Sent from my MotoE2(4G-LTE) using Tapatalk
  4. Thread: Flare?

    by annekat
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    Re: Flare?

    Welcome to the forum! I think it's possible that the blood results will catch up with the symptoms at some point, but it would be nice if you got an adjustment in meds to deal with it before that...
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    Re: Biosimilar for rituximab

    I wonder what the cost will be, compared to that of Rituxin.


    Sent from my MotoE2(4G-LTE) using Tapatalk
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    Re: 17 Year Old Daughter

    Welcome to the Forum, Samantha, and I'm glad you found us. Dirty Don has given you an excellent overview of what to expect when working with Mayo. Please keep us posted on how Madison is doing, ask...
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    Re: Newly Diagnosed

    I think you are smart not to change doses at this point, and your doctor might not like it. I've been at this for 8 years and think I was left on most of my meds for too long. That gave me plenty of...
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    Re: Newly Diagnosed

    My doctor has been resistant, for some reason, to prescribe me those different denominations of pred pills. So I just have 5mg pills and have to split one of two, to get a 7.5mg dose. Yet he doesn't...
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    Re: Newly Diagnosed

    Sherry,
    I usually mention, but forgot to, that our archives may be searched, going back to the beginning of the forum, on any WG/GPA related subject you can think of. Just look for the word SEARCH...
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    Re: Newly Diagnosed

    Understandable that you'd feel that way. It is overwhelming at first, hard to get the right information on the disease and its treatment. You have come to the right place to find info, support and...
  11. Thread: Transplant

    by annekat
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    Re: Transplant

    Well, I wish it was more of an improvement, but agree that it is worth being happy about in the face of all the previous ups and downs. I guess it's just going to be that way for awhile. Thanks for...
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    Re: 20 year old son

    Hi, Sherry. We all remember the stress of the first stages of having WG/GPA. Many are still feeling the symptoms and side effects of the meds, years later. But most will see a significant change for...
  13. Thread: Transplant

    by annekat
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    Re: Transplant

    Oh, rats! I'm sorry to read that. Hoping and praying things turn around for the better again. You must have the patience of a saint, putting up with these inconsistent results. Hang in there!

    Sent...
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    Re: 20 year old son

    Sometimes labs take some time to catch up with symptoms, but in my case, with flares, the increased inflammation showed up in labs pretty quickly. Everyone is different.

    Sent from my...
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    Re: 20 year old son

    I had both headaches and night sweats at the beginning of when WG escalated and I was getting diagnosed. Both of those disappeared quickly with aggressive treatment with Cytoxan and prednisone....
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    Re: 20 year old son

    PS the advice from me2 about diligent nasal/sinus rinsing was good, and also his mention of Alkalol. I have used it, it is all herbal and natural substances, and it can be therapeutic and soothing,...
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    Re: 20 year old son

    I'm sorry you had to repeat about your son's headaches, as I didn't show adequate sympathy for that. It must be disheartening to have him not sounding very good on the phone. Headaches are troubling...
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    Re: 20 year old son

    Nice to hear from you, Aneinu, and that things are going pretty well for your son. I can't add to what others have said about symptoms of flares. They are right. Big congratulations on your son's...
  19. Thread: Transplant

    by annekat
    Replies
    236
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    23,433

    Re: Transplant

    Thanks, Pete, for the update, and I'm pleased to hear that your kidney numbers are now improving. Also that your dad is doing well, and that you took a vacation with your wife. Keep up the good news,...
  20. Thread: Transplant

    by annekat
    Replies
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    23,433

    Re: Transplant

    Good question, Alysia. I had thought he had Liked something I wrote on the 28th, but just looked, and it was the other Pete. I know his username is Gilders. So now I'm a little worried, too. I hope...
  21. Re: My Rhumy and I started me on High doses of THC and CBD oil

    Being from a state where THC is legal, I don't need a prescription. I also don't need to use a lot of the product. I only use it at night, and not always. If I use too much it keeps me awake. So I am...
  22. Thread: Transplant

    by annekat
    Replies
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    23,433

    Re: Transplant

    I've been wondering, Pete. Using Tapatalk I am not always informed of new posts. This journey of yours just keeps getting more complicated! Dang. It sounds like the docs are well on top of the ins...
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    Re: Polymyalgia rheumatica

    Always good to learn about other autoimmune diseases. I'm glad your sister is doing better on the prednisone. I hope she doesn't need it long term or in high doses.

    Sent from my MotoE2(4G-LTE)...
  24. Thread: Transplant

    by annekat
    Replies
    236
    Views
    23,433

    Re: Transplant

    Thanks for the update, Pete... I'd been wondering a little. It seems like there's no end to the possible complications, even if not serious but still troubling. If the docs think you are generally...
  25. Thread: Mags

    by annekat
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    Re: Mags

    Pete, that seems very worthwhile to me, for one. I know about the ear crystals, and think I may have that problem along with other types of vertigo such as Meniere's disease (my ENT's suggestion). I...
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