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  1. Replies
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    Re: Happy Birthdays Thread

    Anne,
    A belated very happy birthday wish. Sounds like you had a very blue day. Are the blueberries in your area large and sweet?
    Whether we celebrate them or not birthdays are grand, because it...
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    Re: Prednisone Reduction

    Geez-O-Pete! You guys got hit with a double whammy. Stress is hard on GPA, sometimes it just canít be avoided. Moving is brutal, but at least now no worries about maintaining a yard or shoveling...
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    Re: Prednisone Reduction

    Thanks Pete. It has taken me 2 months to get down 1 1/2 mg without a flare. Any faster and I will be back where I started.
    Sorry to hear you are having a flare. Do you know what brought it on? ...
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    Prednisone Reduction

    Pete,
    Am looking for the prednisone taper chart you put in a while back.
    Masha
  5. Thread: My GPA story

    by Masha
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    Re: My GPA story

    Welcome Rosie,
    So glad you found us. Keep checking in. It is the best way to stay informed.
    It took me over a year of having been diagnosed to find this site. Only three years ago the things you...
  6. Thread: Transplant

    by Masha
    Replies
    236
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    23,432

    Re: Transplant

    Congratulations on your son’s graduation. That would be a happy outing.
    You are always in my prayers. When I read that things aren’t going too well for you, I just don’t know what to say.
    So I’ll...
  7. Re: Wegeners/GPA for 41 years - Transplant for 25 - Having a Relapse

    Hi Kim,
    Welcome. Wow, your Wegeners journey has taken you down a long hard road!
    What you have already done for the nasal problems are all the things I would suggest.
    As far as the Rituxan...
  8. Thread: Newly Diagnosed

    by Masha
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    Re: Newly Diagnosed

    Donít know why they finally approved it. I am guessing there are questions that qualify you. With Wegeners there are days when some of us just canít move, and at other times it is different. Maybe...
  9. Thread: Newly Diagnosed

    by Masha
    Replies
    26
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    687

    Re: Newly Diagnosed

    Sherry, Just had lunch with friends. Their nephew has an autoimmune disease too. He applied for the disability 3 times. He was rejected the first two, but got it on the third try.
    Masha
  10. Thread: Newly Diagnosed

    by Masha
    Replies
    26
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    687

    Re: Newly Diagnosed

    Sherry, Regarding your long term disability_ If you qualify for long term disability and you have paid into Social Security for 40 quarters, you are qualified to receive the full amount of SS that...
  11. Thread: Newly Diagnosed

    by Masha
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    687

    Re: Newly Diagnosed

    Sherry, remission is hard to determine, since there are many blood tests involved. My C-anca has always come in higher than normal. I think the best way to tell remission is how you feel, doesnít...
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    Re: new member with question regarding remission

    Hi tac. I wrote a response to newly diagnosed above. It is meant for you and other new members too.
  13. Thread: Newly Diagnosed

    by Masha
    Replies
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    687

    Re: Newly Diagnosed

    Welcome to all the new members who have recently come on board. This is not a fun disease but this is a great site.
    I will reiterate what others have already said. You need a doctor highly...
  14. Thread: Strict Dieting

    by Masha
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    Re: Strict Dieting

    I made us root beer floats for Independence Day. Used diet root beer , frozen yogurt, frosted mugs and PAPER straws.
    Also had a yummy watermelon. Best news yet, my wegs mouth could handle the cold...
  15. Thread: odd symptoms?

    by Masha
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    Re: odd symptoms?

    How is his blood sugar?
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    Vasculitis Symposium

    Who is going to the Vasculitis Symposium in Minnesota? Who has been to one?
  17. Thread: Went to duke

    by Masha
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    Re: Went to duke

    Thanks Keith. Like you, my goal is to be drug free someday. Time will tell. Duke is great! If it wasn’t for meeting you on this site, I might never have thought of it. I am seeing a light in my...
  18. Thread: Went to duke

    by Masha
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    Re: Went to duke

    Thanks Alysia. I knew he was a Nazi. The article you gave me helped me understand the timeline. Sadly, the US brought many of their scientists here to pick their brain after WWII. We must never...
  19. Thread: Went to duke

    by Masha
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    Re: Went to duke

    Yes, I am to start on Bactrim. If I can tolerate it, then I can begin the slow decrease in prednisone. I know others on this site are on it. Can’t remember who. One of the things the literature...
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    Re: Hello from another new member

    Welcome Tricia. This is a marvelous site. Some of the people here have really had a rough go of it. They are more than willing to share their experiences. What I have learned here is worth gold. ...
  21. Thread: Went to duke

    by Masha
    Replies
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    Went to duke

    Hey Everyone,
    I havenít posted much recently because I was making some changes in my treatment.
    Right now I am one happy camper. They say you donít know what you have been missing until you found...
  22. Thread: Transplant

    by Masha
    Replies
    236
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    23,432

    Re: Transplant

    Normal! Yippee! Yippee! Yippie!
  23. Thread: Transplant

    by Masha
    Replies
    236
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    23,432

    Re: Transplant

    Now it seems that we have to rely on what got you this far, prayer and positive thinking.
    Masha
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    Re: Happy Birthdays Thread

    mshb, eat cake, fly balloons and do a happy dance! Happy Birthday and many more.
    Masha
  25. Replies
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    Re: Happy Birthdays Thread

    Happy Birthday to me2! Celebrate and be well. All the best.
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