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  1. Thread: Hi! Guys

    by Reetsky
    Replies
    41
    Views
    7,155

    :hug3: I'm in remission! However, will be on...

    :hug3: I'm in remission! However, will be on immunosuppressants for life, Oh! Joy!! Here's hoping no flares :scared:
  2. Thread: Hi! Guys

    by Reetsky
    Replies
    41
    Views
    7,155

    Nope. Definitely a woman and thank you for the...

    Nope. Definitely a woman and thank you for the compliment; gratefully received. I chose the angel 'cause this is how I would like to imagine him. A strong body to defend me and fight my corner. ...
  3. Thread: Hi Everyone

    by Reetsky
    Replies
    32
    Views
    6,303

    Hi Linda, it won't ever be the same again. ...

    Hi Linda,

    it won't ever be the same again. There is now a huge hole where your heart used to be and it's the same with your other children. My story is the same as your sons (it's on the weggie...
  4. Thread: Hi! Guys

    by Reetsky
    Replies
    41
    Views
    7,155

    Hi there. Don't know if you've read my 'Weggie...

    Hi there. Don't know if you've read my 'Weggie story' but similar to yours except I wasn't diagnosed until I was admitted to hospital, put on life support, family called in as might not make it...
  5. Replies
    28
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    4,627

    Hi There, I was initially prescribed 100mg of...

    Hi There, I was initially prescribed 100mg of Cyclo and 40mg of Pred. I had a moon face with the Pred that slowly reduced as the lowered the dose over time. However, I was only on the Cyclo six...
  6. Thread: Hi! Guys

    by Reetsky
    Replies
    41
    Views
    7,155

    Sorry Anne, yes the photograph in my info area is...

    Sorry Anne, yes the photograph in my info area is me but the Angel is a picture I found on the 'net'. Don't be afraid to ask me anything, will always answer where I can.
  7. Thread: Stress

    by Reetsky
    Replies
    30
    Views
    5,578

    I also had whooping cough as a baby. The...

    I also had whooping cough as a baby. The symptoms and synchronicity just keeps growing with us on this forum. The more questions I ask the more posters respond with similar tales.
  8. Thread: Hi! Guys

    by Reetsky
    Replies
    41
    Views
    7,155

    I'm glad you like my Guardian Angel! He's quite...

    I'm glad you like my Guardian Angel! He's quite dishy, isn't he? Bloods were good but now on another med for high blood pressure and protinuria!! And so it goes on.............

    Yesterday is...
  9. Thread: Hi! Guys

    by Reetsky
    Replies
    41
    Views
    7,155

    I'm appalled at the lack of real face to face...

    I'm appalled at the lack of real face to face support for WG (GPA) sufferers. Foundations, Societies and Groups exist that print glossy info booklets and pamphlets and make them available on the...
  10. Thread: Stress

    by Reetsky
    Replies
    30
    Views
    5,578

    Your stories make me visualise a huge jigsaw...

    Your stories make me visualise a huge jigsaw where each piece is a different symptom and diagnosis. However, there is a huge hole in the jigsaw - right in the middle and it can't be completed until...
  11. Thread: Stress

    by Reetsky
    Replies
    30
    Views
    5,578

    I'm puzzled. Most of us seem to have evolved...

    I'm puzzled. Most of us seem to have evolved this illness from the sinuses/ears. Surely research is being carried out to follow the trail from ENT to GPA? I've had two sinus ops, couple of burst...
  12. Replies
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    2,517

    Thanks Phil, will check the map too. It would be...

    Thanks Phil, will check the map too. It would be nice to sit down and talk to people experiencing this illness.
  13. Thread: Stress

    by Reetsky
    Replies
    30
    Views
    5,578

    Most of us seem to start symptoms with Sinuses....

    Most of us seem to start symptoms with Sinuses. It would be interesting to know how many of us had Tonsils/Adenoids removed previous to onset of WG and could this be a link n the chain of symptoms?
  14. Replies
    11
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    2,628

    Hi Joyce, your story is very similar to mine. I...

    Hi Joyce, your story is very similar to mine. I have four grown up children (3 live close bye) but only one of them (who now lives with me) can cope with this illness. It's a strange one. Your...
  15. Replies
    3
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    2,517

    Anyone in Scotland

    Anyone know of face-to-face support group in Lanarkshire or surrounding area?
  16. Thread: Stress

    by Reetsky
    Replies
    30
    Views
    5,578

    Stress

    Hi Guys

    medics have told me that stress is not a contributing factor to GPA (WG). I'm not so sure. What do you think?
  17. Sticky: :biggrin1:Thank you for taking the time to list...

    :biggrin1:Thank you for taking the time to list these websites: you are a real Gem.
  18. Thread: Hi! Guys

    by Reetsky
    Replies
    41
    Views
    7,155

    Hi Barbara, sorry to hear your unwell. Keep...

    Hi Barbara, sorry to hear your unwell. Keep asking questions and you will get answers from fellow sufferers. This site is superb and the people on it are all like us, victims of this pernicious...
  19. Thread: Hi! Guys

    by Reetsky
    Replies
    41
    Views
    7,155

    G'day! Had bloods taken today. Off to renal...

    G'day! Had bloods taken today. Off to renal clinic on Thurs. will know then if WBC count (currently 236) and haemaglobin (currently 10) have improved and whether I remain off Moefitil (this is...
  20. Thread: Hi! Guys

    by Reetsky
    Replies
    41
    Views
    7,155

    Hi Barbara, nice to meet you. You would think...

    Hi Barbara, nice to meet you. You would think that by now clinicians would be more clued up on this illness. There are a few sites on the Internet where you can get information but in my case my...
  21. Thread: Hi! Guys

    by Reetsky
    Replies
    41
    Views
    7,155

    Yesterday is history, Tomorrow is a mystery,...

    Yesterday is history, Tomorrow is a mystery, Today is a gift. That's why it's called the present. - ​that Chinese fella Confu..........
  22. Thread: Hi! Guys

    by Reetsky
    Replies
    41
    Views
    7,155

    I'm living in Hamilton, South Lanarkshire but my...

    I'm living in Hamilton, South Lanarkshire but my Son went to university in Dundee. Thanks everybody for quickest welcome and responses. It's good to feel supported.
  23. Thread: Hi! Guys

    by Reetsky
    Replies
    41
    Views
    7,155

    My Consultant at hospital is very good. It's the...

    My Consultant at hospital is very good. It's the potential flare diagnosed as 'mumps' that will concern me.
  24. Thread: Hi! Guys

    by Reetsky
    Replies
    41
    Views
    7,155

    Hi M Still with same docs at moment, only just...

    Hi M

    Still with same docs at moment, only just recovered enough to think about changing. However, my meds are free so it costs GP practice a fortune. There is some justice there after all.
  25. Thread: Hello There

    by Reetsky
    Replies
    4
    Views
    1,145

    Hi Michelle Nice to talk to you. Just put story...

    Hi Michelle
    Nice to talk to you. Just put story on forum, it's a long one!! I'm from Scotland.

    Happy Trails,
    Reetsky.
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