Search:

Type: Posts; User: kathy.parkerwhite

Search: Search took 0.01 seconds.

  1. Replies
    47
    Views
    9,105

    I am so sorry that you have to deal with having...

    I am so sorry that you have to deal with having surgeries after surgeries! I get disappointed when they tell me I have to have another bronchoscope but that is nothing compared to what you are going...
  2. Replies
    23
    Views
    2,775

    There's one thing that I find hard to comprehend...

    There's one thing that I find hard to comprehend WG is found all over the world and yet the experts still don't have a definite cause of this disease. Some theories are possible inhalation of...
  3. Replies
    14
    Views
    1,520

    Good advice but I just wish I would have known...

    Good advice but I just wish I would have known about this site at the onset of my WG! I could have used a place to bounce questions and concerns to. Between all the bronchoscopies, laryngoscopes,...
  4. Replies
    17
    Views
    3,321

    Thank you Red I will sure try and make it there!

    Thank you Red I will sure try and make it there!
  5. Replies
    17
    Views
    3,321

    Kami, can u contact me about when your face to...

    Kami, can u contact me about when your face to face next support group WG meeting will be held? I live on Mille Lacs Lake by Malmo, MN. So Pine City would be in close proximity for me. My email...
  6. Replies
    17
    Views
    3,321

    I tried to send a reply to Kami to get info on...

    I tried to send a reply to Kami to get info on joining the face to face support group for WG. My message didn't seem to go through. My email address is: [email protected] Plz contact me...
  7. Replies
    17
    Views
    3,321

    Hey this sounds like fun getting together with...

    Hey this sounds like fun getting together with others who can relate to all the WG issues and yet be able to forget about them for an evening or day of fun! I live on Mille Lacs Lake in the NE...
  8. Replies
    68
    Views
    6,185

    Lilly you sound like a very nice person with a...

    Lilly you sound like a very nice person with a loving spirit and a giving heart! I'm sorry you have gone through such emotional trauma along with dealing with WG signs and symptoms! I have had WG...
  9. Replies
    47
    Views
    9,105

    Gwen and Andrew you both are very fortunate to be...

    Gwen and Andrew you both are very fortunate to be feeling so well I congratulate you both! I doctor at the Mayo Clinic and I was diagnosed 11 years ago. I don't seem to be able to stay in remission...
  10. Replies
    22
    Views
    3,826

    Oh and I forgot to say congrats to you Lisa for...

    Oh and I forgot to say congrats to you Lisa for getting your tracheotomy out after such a long ordeal! How great you must feel and you just keep on smiling and let the world know you're alive and...
  11. Replies
    22
    Views
    3,826

    I was diagnosed with Wegener's Granulomatosis 11...

    I was diagnosed with Wegener's Granulomatosis 11 years ago. At that time I had involvement with my kidneys and upper airway (sub glottis stenosis). My kidneys improved with treatment but I have...
Results 1 to 11 of 11