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  1. 2019 International Vasculitis Symposium

    Registration is open for the symposium in Minnesota this year. I have already registered and booked my room for the event.

    Here is a link for the event...
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    Looking for your ideas

    If you had an opportunity to attend a conference regarding Vasculitis and Wegener's what topics, questions, or break out groups would be of interest or important for you or a caregiver?

    I am...
  3. Thread: Checking In

    by blu4runner
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    Re: Checking In

    Good to hear from you. We are planning on going to the symposium in MN next year as well
  4. Thread: Retired

    by blu4runner
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    Retired

    Well I am officially retired now. My private disability coverage claim was approved so I sold my insurance agency. Now to take time to try and improve my health and mark items off my bucket list....
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    Re: Doctors in Charleston

    Congrats and best wishes on your continued path.
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    Re: Gastro. Issues - Others?

    I agree with Pete get a rheumatologist who is a specialist with GPA
    Here is the link fron Vasculitis foundation of doctors https://www.vasculitisfoundation.org/mcm_resources/medical-consultants/
    or...
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    Re: Cataract Surgery

    When mine was done I felt absolutely no pain of any kind and I was able to see out of the eye immediately. I didn't have any bandage to cover my eye post surgery. Before the procedure we spent about...
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    Re: Mother faces life-changing procedure

    Best wishes to your mother and her surgery. I live in VA also in Stafford.
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    Re: Wegener's Story

    Great video my initial diagnosis came from UVA back in 2012.
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    Re: Cataract Surgery

    I had cataract surgery on both eyes earlier this year. The results were amazing. I had one eye done and a week later the 2nd eye. No pain and I was able to drive the next day. My only regret was that...
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    Re: All I want for Christmas is a new knee

    Best wishes for success with the knee surgery. My wife had a knee replacement in July and the results have been great. Hoping for a speedy recovery
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    Re: My experience with SGS

    I too experienced the same except my airway ended up totally blocked and as a result I have a trach and the damage is to the point that it will most likelt be there for life. But at least I can...
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    Re: Rituxan and infections

    I am fortunate I don't seem to get infections after my RTX infusions and my B cells actually go to 0
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    Re: Well It's time to retire

    Thanks my health is OK I will have a permanent trach and loss of lung function but I can still do little thing just the stress and pressure of running a business got to be too much. I have 2 grand...
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    Well It's time to retire

    I have decided to go ahead and retire at age 56. My private disability claim was approved so now I have to sell my business. It's bittersweet since I have been an Allstate agent for 34 years but it's...
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    Best of luck with the infusions. Rituximab has...

    Best of luck with the infusions. Rituximab has been wonderful for me and seems to keep me in remission. As far as hair loss, I was bald before I started so no real effect on my current hair situation
  17. Happy to hear that you had a great trip

    Happy to hear that you had a great trip
  18. Wow this is great news if it gets approved

    Wow this is great news if it gets approved
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    Best luck with your infusions. They have been...

    Best luck with your infusions. They have been un-eventful with no issues for the 16 infusions that I have completed. The Rituximab has been very good controlling my symptoms The benedryl given does...
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    We were fortunate to meet people from around the...

    We were fortunate to meet people from around the world while there. I met a family that came from Australia to the event, several from Canada another from Alaska and several from my home state of VA...
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    Sorry I didn't get to meet you face to face but...

    Sorry I didn't get to meet you face to face but the symposium was great again and yes the DR made a nice joke about your son
  22. Thread: New!!

    by blu4runner
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    Welcome to the group. The symposium was excellent...

    Welcome to the group. The symposium was excellent again this year. Best of luck in your treatment
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    It was good to see you again. It was another...

    It was good to see you again. It was another great symposium
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    Symposium is this week! Looking forward to see...

    Symposium is this week! Looking forward to see what's new
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    I think you will learn quite a bit at the...

    I think you will learn quite a bit at the symposium. Most of the presenters are aware of their audience and present the information in a manner that we can understand. I have learned lots at the 2...
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