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Type: Posts; User: jeother

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    Balloon Dilation coming up

    Hello friends!

    I had a couple of questions. I am recently diagnosed with Wegener's. I have involvement in my sinuses (had decompression), saddle nose, and airway. I have just recently finished my...
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    Rituxan and muscle fatigue?

    Hi everyone! I am 3 infusions in of my 4 weekly infusion cycle. So far I haven't had too many issues with the medication. I have some general fatigue a couple days out from the infusion that lasts a...
  3. Thread: Hi there!

    by jeother
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    Hi Gab! Glad you got a quick diagnosis. Are you...

    Hi Gab! Glad you got a quick diagnosis. Are you feeling better after your infusions? My older daughter is coping pretty well. She is a tough kid and has had to deal with a lot worse with my son. We...
  4. Thread: Hi there!

    by jeother
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    Hi Pete! Thanks for your response. No alarm at...

    Hi Pete! Thanks for your response. No alarm at subglottic stenosis, so no worries. ☺️ I am actually very familiar with it. My son has a grade 3 subglottic stenosis and has a trach as a result. I've...
  5. Thread: Hi there!

    by jeother
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    6
    Views
    2,260

    Hi there!

    Hello everyone! Just wanted to introduce myself. I am 34, married momma to 3 beautiful kiddos...13 and 8 year old girls and a 2.5 year old pistol of a boy. He is special needs because he was trached...
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