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Type: Posts; User: Helen

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    Re: baha hearing loss questions

    Thank you Lilly.
    It's horrible and unnecessarily complicated than most people can imagine. I'm suffering greatly from it, but not divulging. I can only keep it light here, as the reality is,...
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    Ear Implants

    I became permanently disabled following cochlear implantation (CI) when I was "normal" prior to it's surgery. CI surgical methods are different from Baha. All my issues prior, were infection...
  3. Re: Chronic sinus infections, bronchitis, and nasal rinses.

    Dear Annekat- it took me some time to reply, as my ENT appt. was truly horrible, placing me into a slump that you would not believe. The Dr. would not share the video of the painful nasalscope that...
  4. Re: Your Blood Cell Size May Help Predict Poor Granulomatosis with Polyangiitis Outco

    Thanks for the url. Reading through, it eventually lead to other url links - of prior and current research (or theories) updates done in N. America, conjoined with other countries. Still reading,...
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    Re: Blood Tests - what to check

    Still unable to get referral to Rheumatologist. Another member suggested trying an Internist instead. Still trying.
    There are many Rheumatologists out there and my GP thinks any of them are doable....
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    Re: Gastro. Issues - Others?

    Hi Bing, I was referring to Rheumatology, where one was under the Vasculitis Foundation. The front desk claimed to not know if their own Rheumatology Dr. in the next room had GPA knowledge. It's a...
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    Re: Ear issues - experiences

    Explaining the type of tinnitus is important. The high-pitch type really signifies over-noise exposure damage, which is unfort. causes permanent conductive type of hearing losses. High pitch tinnitus...
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    Re: Ear issues - experiences

    Tom, that sounds very alike to a "Dynamic" Eustachian Tube Dysfunction (ETD). It's going between a Patulous (PET) condition (roaring tinnitus- everything is too loud) when stuck opened, then when...
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    Re: baha hearing loss questions

    Hi Tom, do you know how your hearing-loss happened?
    Baha is for conductive hearing losses. It's an invasive procedure and the outcome depends on each individual. Have you ever tried a...
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    Re: Ear issues - experiences

    Yes, this is one of the symptoms I am really suffering from too, but 24/7. It's debilitating. PET usually happens after long term ETD and sinus problems. Mine happened immediately after an ear...
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    Re: Gastro. Issues - Others?

    I agree with Bing's info. The Gut is a major factor to overall health. I am not on any medication that may have caused my current gastro issue. However, I did develop ulcers in the past from taking...
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    Re: Ear issues - experiences

    There's the possibility of a cause to many people's ear dilemma is from Eustachian Tube Dysfunction (ETD). The ETs get clogged (closed). This creates too much mucous buildup, w/ possibly bacteria...
  13. Re: Chronic sinus infections, bronchitis, and nasal rinses.

    Once again, had an ENT appt. which did not go well. I was told by Gastro. to see the ENT for my nose/ear issues and due to "policy" (that I never heard of), I was not allowed a new ENT (2nd opinion)...
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    Gastro. Issues - Others?

    Diagnosed surprisingly by endoscopy, of chronic gastritis and esophageal stricture requiring dilation. However, it was the lab-biopsy results from stomach polyps that gave the diagnosis. The Gastro....
  15. Re: Six months in and just taken off Predisone. Retuzin infusions every six months.

    Wow, that's pretty good for your age! I hope things get better again from this pt. on as you got this taken care of right away.
    Do you have any suspicions to what may have suddenly caused it? -Helen
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    Re: Blood Tests - what to check - What does it mean?

    Hi, thank you all for taking the time and "Get it" to understand some of my frustrations. For so long, I've had questions which I am still struggling to get answers to. The Drs. I've seen over the...
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    Re: Anyone have the same lung problem?

    Hi Lily, I am new to this forum. Some of your post were delightful to read because you have a witty side despite the pain. I may be able to provide some input to your current ENT frustrations, which...
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    Re: Blood Tests - what to check - What does it mean?

    Thanks Pete. Yes - since the helpful info. here, I have been trying to.
    Insurance informed that it did not require a referral which is good news. The bad news, is the (booked 2 mos.) Rheumatology...
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    Re: Blood Tests - what to check - What does it mean?

    Hello Alysia, thank you for your willingness to help share info. and understanding. That was just -one- of few horrible experiences. A reason to much of my frustration is because I've become further...
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    Re: Wegeners is back!

    I'm sorry of this, I can relate to it - truly. I'm wondering, since you had been doing so well in remission for over a year (as well as Donna here: 30 yrs). Did the Fellow Dr. even ASK any questions...
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    Re: Blood Tests - what to check - What does it mean?

    That was helpful - thanks Ed. It appears those in the field of Rheumatology may be the only ones who appear to recognize the reasoning of all this specific type of inflammation in bloodwork to be...
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    Re: Blood Tests - what to check - What does it mean?

    The irony is, I'm here "on topic", but yet redirected.
    I totally disagree. That comment was aggravating and ignorant, to quickly jump into assuming that all Drs know best. I hear this phrase often...
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    Re: Blood Tests - what to check - What does it mean?

    During one of my E.R experiences, which required admittance and isolated for 3 days to a room where there were no Drs. I was originally carried to E.R very sick, not lucid to be able to communicate....
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    Poll: Re: Epstein Bar Virus Curiosity

    Very interesting. It was a Naturopathic Dr., years ago who provided the blood-test and noted Epstein Barr. It can go "dormant". I did have shingles a few times over the years. I have not seen general...
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    Re: Tracheal stenosis and remission (vs. esophageal stricture)

    In the past I used to have duodenal ulcers from taking too many NSAIDs trying to cure my "illnesses" to function at work. I stopped taking NSAIDs for that reason but my illnesses progressed. My...
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