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Hello again everyone, I haven't been on in a while but here is a rant I've been dying to tell people who also have auto-immune diseases,

I feel that regardless of how serious this disease is, it...

Hello everyone-

So I have been on this site for a few months now, and I really like it. But there is one thing- there is a ton of complaining to problems you can easily fix! I know it seems like...

Ive been eating paleo for a few months now and it really helps. Also gluton free works.

Hello Brooke! I was looking threw old posts and I found yours. I too am a young Wegners victim (16) and I agree that there are not a lot of young people with this disease (no offense to everyone else...

I have been in remission for three months now, and I had my first maintenance treatment a month ago. The nurses will typically give benidrill and Tylenol, so you won't have a reaction. I have to get...

Don't let him make you feel stupid! You have every right to question your own health. Doctors aren't always right. You are the best judgement of your own health.

Thank you!

I think being "adult enough" for sex isn't a specific age; it's your own choice.

Thank you and I am!

I only asked about if it was ok with wg... not my age.

I had a little swelling in my knees just from getting any kind of infusion; it was probably just fluid build up. I would ask your doc if its getting a little out of hand. RTX shouldn't have any side...

Ok so I am on a low dose of pred and only getting RTX once every 3 months. My immune system is just about normal, minus the b cells. Is it ok to have safe sex?

HI everyone!

Ok so I've been on steroids for a while now, but I am on a very low dose currently (7.5mg). Luckily, I avoided any weight gain (lost a lot of weight from the disease anyways) but I...

I did not gain weight on steroids either. I started on 60mg as well, and went down to 55 after 3 weeks, and tapered off slowly from there (now on 10mg). 12 weeks does seem like a long time, but it...

I was on 60mg of Pred, and my face did swell and I felt weaker, but being on 12.5, I'm practically back to normal. Bactrim can cause a little nausea at first, but you can get used to it (also depends...

Ok good luck with everything and thank you!

For anyone who was on a high dose of prednisone; when did you start to see the "moon face" go away? I was on 60mg and now I am at 20mg and it has gone down a little. Just curious about anyone else...