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Geoff, What a great idea! I wipped wegeners today by putting my braces on and going to the gym...feels great! Thanks Geoff

Keegan...good reports from the Doc always make me feel FREE, the air seems fresher and life is good! Congrats on a good check up keep smilin'

Steve

Marcia, well now I don't feel so dumb about getting around the website! I am on facebook and I'll see if I can figgure out how to join that page. I like the idea of contacting a senator about this...

catsmtn, Hi I recently was having a RTX infusion at the VA here in Denver when during casual conversation with staff there I found out that there are now 3 other cases of WG being treated there. Of...

Keegan55, hang tight friend ups and downs are part of this crazy ride, we all feel it!

Steve

TooToo, sorry to hear about your infections but you have to get after the docs to treat them! I had sores on my feet but didn't feel them because I have no feeling in my feet due to nerve damage...

Cindy, Diabetes is considered SC because the percent of Nam Vets that have it is off the charts compared to non Nam Vets and general population. There are about 12 diseases that are "presumed" to be...

Hi Auntie tootoo it wasn't me who mentioned the lipid profile but my triclyerities have been high. I was controlling that with diet and exercise, like you, and like you pred did a number on that! ...

Debra, the rtx infusion is something that is used every 5 or 6 months in a lot of cases or so I'm told. I think I have seen people on this site who also are on a maintenence of rtx once or twice a...

Hey Mike, I'm not riding any longer (2007 injury at work) but it is always on my mind. I remember being on a "Vet run" one time an someone asked my why we make these runs. The common answer was "we...

Cindy, If your PCP is an idiot complain and get a new one there are patient advicoates at the VA for just this type thing. I have a Nurse Practioner that works with my rumey who told me once (when...

Hey Debra C, don't remember the Dove but Englewood was never really my stomping ground I usually lived outside of town Baily, Parker, Castle rock, Broomfield, etc. I do love the mountains and hope to...

Hey Acker, I know exactaly what you are talking about when you say riding is a great way to deal with problems. I used to have a harley and riding was the best theropy I can think of. Had to quit...

ingemilb, it seems that our Doc's are on the same page. I was told the Pred causes diabetes "sometimes" and usually in people who are "pre-diabetic", which I was. I too was trying to control it but...

Hi Acker, Man that's a lot of difficult stuff to manage...but I think this site is a big help it's like instant friends! I just signed up a little while ago and have enjoyed exchanging stories with...

Thanks Alysia I appreciate the kind words, a visit to Isreal is on my list of things to do if medical conditions allow it. I'm a little concerned about travel of great distances because of...well...

Marta,

I hope you skiing trip goes great, I'm not a skier but love it when there is lots of snow in the mountains...it provides the water to keep the golf courses green. It is pretty nice here in...

Marcia,

I will google the Dr. and talk to my DAV rep about this when I have the Dr. info. I currently have a claim in for diabites and I'm waiting for a responce from the VA.

Steve

Windchime,

Did you get the 30% for the WG? If so that's an interesting fact that could be helpful to other vets. I have seen reports that vets exposed to AO at bases where it was shipped from or...

Marta,

Wow a ton of interesting information thanks!

Steve

Hi I started, this time, at 80 down to 7.5 the moon face started to go when I got to 10 but the weight i gained is still here. I'm working on getting rid of it but it seems like a very slow process....

Hi Michelle,

I don't have any idea if AO is in anyway a cause for WG, but with all the other health issues caused by these and other chemicals I always wonder. I read a report/paper online about...

Sorry to hear you are in a bad place but I can relate. August of 2012 I went into the V.A. hospital here in Denver with drop foot in both legs. I was in a wheelchair and using a walker and braces on...

Sorry to hear you are in a bad place but I can relate. August of 2012 I went into the V.A. hospital here in Denver with drop foot in both legs. I was in a wheelchair and using a walker and braces...

Marcia I am also a Vietnam Vet with Wegener's same era as your husband '68-'69 spend most of my time south west of the Danang area. I hope for the best for you and your husband Dan. I have not put...