Predictions are hard, especially about the future :-)
Type: Posts; User: Keith
Predictions are hard, especially about the future :-)
It’s crazy how the mask issue is so political. The economy has a large influence on election outcome, so too many folks are in denial about seriousness of COVID and benefit of wearing masks. ...
I watched the webinar and got the same impressions. Enjoyed it, more data needed.
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My tinnitus was extreme initially. It was a constant presence I could not shake. It is much better after a couple of years, but is still there. Especially when I think about it like now ... I...
From Wikipedia (because I didn’t know)
An orphan drug is a pharmaceutical agent developed to treat medical conditions which, because they are so rare, would not be profitable to produce without...
Peace and love to all from NC!
Hi Brad, looking back it seems docs may have insisted I get kidney BX which confirmed DX. Not certain as was in a fog. If so, this delayed treatment which contributed to ongoing nephropathy in my...
I see Dr Ryan Jessee at Duke South clinic. Get infusions there as well. It is much nicer than the hospital, easier to access and free parking. I’m pretty sure Dr Jessee studied under Dr Allen. He...
You will be in good hands at Duke.
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Hi Mattieus,
I am up to 100 MG / day of Azathioprine / Imuran. It may be increased further if my doc and I decide to halt the RTX infusions. I've had the infusions for 2 years since DX. January...
Masha,
Great to hear you had great results. I believe Dr. Allen was one of the the 'supervisors' of my Doctor who was in residency for a year or so of my diagnosis. I saw him last week and he...
I am an IT leader in a plant. We ALWAYS have work to do on holidays and take turns providing coverage. What I do is much less important than improving health or saving lives. Sad state of your...
Thankfully no. How about you?
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Thanks
My doc had told me not to worry, they had many others on higher doses with no issues but I didn’t have a feeling of the magnitude.
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Hi Prabu,
I have no experience on Australia but want to wish you well on your decision and health.
It is good to have options!
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I’ve not heard of that but I’m less than 2 years in. Watching though as I’ve been on imuran for maybe 20 months. 100 mg now as I’m almost off of prednisone.
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Hi Rob, welcome!
Your experience was very similar to mine. I was 49 and had been very healthy up to that point.
I agree your doctors did an outstanding job of diagnosing. It gives me hope...
In regards to Prednisone - I was on 2.5 mg for 2 months. I started to wean further (with rhuemy's agreement) by mixing in 2 mg every other day or so (it was somewhat mathematical). Anyway ... after...
I use Flonase several times a week, depending on when my ear starts stopping up. I need to investigate possible issues from long term use.
Appears admission and transportation could qualify as an HSA expense. But not lodging and meals.
Why is medical conference admission/transportation eligible?
However, as opposed to the cost of...
Love your username, one of my favorites.
Interesting post, plausible. Going to check out the links.
I dropped 35 lbs with Keto diet in 2 or 3 months which was great. Unfortunately, my cholesterol elevated much higher than a year prior. The doc gave me 60 days to correct with diet and test again. ...
"monitor your urine at home" - I remember something about this in my initial research months ago and forgot about it. I should get on this forum more often.
Luckily I have appointment with rheum...
Hi toolman, thanks for sharing your story. It sounds like you are in good hands. I had fewer symptoms than you but it was absolutely the hardest thing I've been though. I don't want to imagine...
Hi Linda, welcome to the group!
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