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    Re: Thankful to find this forum

    Hi Dave,

    I feel absolutely the same about this forum.
    I got diagnosed in 2010, and my first foray into Wegener's was a Facebook page, but I absolutely hated it as it felt like a 'who has it worse...
  2. Thread: Statistics

    by marta
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    Re: Statistics

    Thank you Richard for this awesome tidbit about Dr. Fauci and his contribution to me being alive today. Because of this moment, I have a whole new respect and appreciation for this man.
  3. Thread: Feedback needed

    by marta
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    Re: Feedback needed

    And I should add that you're awesome, amazing, astonishing, awe-inspiring, and I'm super grateful for your work for over a decade for sure (I just had my 10 year anniversary in May, and you were long...
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    Re: COVID 19 and Wegener's - musings

    Thanks drz, I just signed up.

    Also, I found this pre-publication out for peer review which I imagine was the source for the article I linked above, but I sent it to my doc in Edmonton, and she...
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    Re: COVID 19 and Wegener's - musings

    I just got a great article sent to me by Geoff via Sam (thanks you two).
    It talks about this very thing. Much much more articulate than my blabbing.
    ...
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    COVID 19 and Wegener's - musings

    Hi y'all,

    It's been a while. Ready for another LOOOONG Marta post? LOL
    Well here it comes.

    Needless to say, I'm sure we're all thinking about this new world order (C-19) and how it relates to...
  7. Thread: My story...

    by marta
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    Re: My story...

    Hey Smashing, nice to meet you, sorry it's on these terms.

    My name is Marta and I live in Jasper, but originally from Edmonton where the BEST Vasculitis doc in Canada works out of.
    To me - from...
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    Re: Rituximab V Azathiioprine (Imuran) advise

    Hi Ben, so good to hear things are looking up.

    The advice you got above is amazing. I can say without a doubt that the advice I got on this forum from this group saved my life more than once. I...
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    Re: Probiotics ? No Thanks..

    I think this is very interesting. I've been a probiotic fan for a long time, however not in the form of pills or supplements. I've only popped probiotic supplements when I've been in Mexico and have...
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    Re: Hi there Marta - PJ Day Parade

    Thanks gang.
    Wow. Can't believe you found this.

    I'm low key because I'm flaring again.... tis the season, ha ha ha.
    Been waiting on RTX, and going in Tuesday (3rd) for a shot of the magic...
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    Re: Vancouver, BC, Canada?

    Hey Sue,

    I didn't get the private message you said you sent on here. But I'm curious. Why does Dr. Dehgan want you to stay with your original rheumatologist? Is it because your diagnosis is not...
  12. Re: Searching for anybody that has connected their WG to vaccines.

    Back at ya bro.

    May 2018 be the best one yet.

    :thumbup:
  13. Re: Searching for anybody that has connected their WG to vaccines.

    You guys are awesome. Great link Bing. Thanks.
    It's so nice to not have to argue about what went down in your own case with people who were clearly not there, and just show them the science.
    ...
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    Re: Hospitalized currently praying for a miracle

    I just wanted to pipe in and say how sorry I am to hear that your family is going through this. I've often said that I think it's harder for our loved ones to watch us be sick than it is for us to be...
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    Poll: Re: Epstein Bar Virus Curiosity

    I don't know Ed. I've spent the last 8 years learning how WG and autoimmune diseases work, and now I read this random book, and it kind of makes sense, so I start to do research to see how things...
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    Poll: Re: Epstein Bar Virus Curiosity

    So stress can totally be a trigger. I'm now reading the whole life cycle of the human herpes viruses, and many if not all of them can get triggered from latency by stress, among a myriad of other...
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    Poll: Re: Epstein Bar Virus Curiosity

    Interesting Ed, in the book there is a whole chapter dedicated to Epstein Bar Virus causing tinnitus.

    So now I'm cross researching and it's fascinating. I've had ideas before that we can stop the...
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    Re: Any virtual workout buddies out there?

    Like drz said, there are lots out there. Mine is a Trek Powerfly 7, and it hasn't given me any problems thus far (3149.3km as of yesterday afternoon).

    I know I talked Brian's boss and his wife...
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    Re: Any virtual workout buddies out there?

    I'm sure I must have posted on this thread at some point as I'm subscribed, but I have to share this with you all. I don't think I've posted about this particular mode of exercise, and I think if you...
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    Poll: Re: Epstein Bar Virus Curiosity

    I'm the same. I've never had Mono, but many around me have, and I was a cold sore magnet (as is my kid) - I think I might be working on one right this moment, ha ha.
    I'm curious though. I am sure...
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    Poll: Re: Epstein Bar Virus Curiosity

    It's kinda out there Ed. So I don't know how far down the rabbit hole you wanna go. :blink:
    I think right now you focus on your treatment and getting back to normal.
    I will send you a PM because I...
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    Poll: Re: Epstein Bar Virus Curiosity

    Thanks gang. What I've learned since posting this, is that only about 30-50% of people show manifestations of illness when they get the virus. Apparently it's the most common virus carried by humans....
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    Poll: Epstein Bar Virus Curiosity

    Hey gang. I'm just reading an interesting book right now and am curious as to the history on this group - you know how we're always trying to make the connection. Depending on the results that come...
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    Re: Rituxan and infections

    Oh man! I'm sorry they're being jerks. I so hate it when that happens. Go where you can get help. If you have access to it, push as hard as you can. No kidding it's gotta go ASAP. I know I got IV...
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    Re: Rituxan and infections

    Back at ya Jana.

    I was thinking about you all week because I had the c-diff thing on my brain, and was at the doctor's for my daughter (who they think might have gotten PANDAS from a strep...
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