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    Re: First post - diagnosed in 2012

    Hey there thanks for sharing your story and sorry you got auto-moderated :)

    Ear pain is the worst. Very debilitating. Glad you got the diagnosis reasonably quickly though. Awesome that the Metho...
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    Re: I am a new member & fairly newly diagnosed

    Hi Kathy
    Sorry this post got moderated by the robot that lives in this site! Nothing personal. I've approved this and moved it to it's own thread as it's more obvious that way.

    I don't have any...
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    Re: Gave Up on Facebook Groups

    Yeah no one knows how they assess things but it seems odd that they stopped you immediately. You're not missing much though :)
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    Re: Gave Up on Facebook Groups

    Hi Larry!
    Good to have you here. I tend to stay away from FB myself these days although my account is still active. Glad you're in remission though after all that. How's your kidney function...
  5. Thread: Donations

    by andrew
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    Re: Donations

    Always appreciated thank you!
  6. Thread: Hello there.

    by andrew
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    Re: Hello there.

    Welcome Sanja!
    I am in remission and have been for some time now. However I have other health issues as a result of the WG that are checked every two or three months. I haven't had a specific WG...
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    Re: Dagnosed in two weeks

    Hey there! Welcome! You've had quite the trip in many ways :) Some of what you said about thinking you were somewhere else resonated with me. I was knocked out cold in ICU and had some very lucid,...
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    Re: Question via email: Falls and tremors

    Thanks all! Appreciate the feedback :)
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    Re: Covid vaccins and WG

    Hey Sixto thanks for reading all that time. Welcome! We would be pleased to know your experience, thanks for sharing!
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    Question via email: Falls and tremors

    This received via email:

    As you know i am a Wegener's patient i am 68 years old.
    I have had several falls, sometimes when i am walking people think i am drunk because the way i walk , I can't...
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    Re: Love Triplet Talk

    Kids make me tired. The talk of triplets makes me three times as tired :smile1::laugh::blink::biggrin1:
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    Re: G'day Mate.. From Australia,Land down under

    Dutchie!!! There have been a few of my fellow Aussies sign up here recently. Welcome! Those headaches are horrid. I hope that the surgery fixes it. When is it happening? I'm glad Melbourne is opening...
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    Re: One year in, greetings from Australia

    Hahaha yeah track it down and kill it slow - that's the way to do it :)

    I'm going ok. Been a bit over 17 years since diagnosis. Even though I'm in dug-free remission I have ongoing niggles from...
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    Re: One year in, greetings from Australia

    Hey Peter
    Welcome and thanks for sharing your story. Where abouts in Australia are you? I'm in Canberra. Yeah it's a confusing time during that initial 'discovery' phase where you could be afflicted...
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    Infections from mosquito bites

    This via email from one of our members. Does anyone have any advice?

    My biggest problem is skin infections from mosquito bites and living near Houston. The only thing to take is small doses of...
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    Re: New Member ~ Phoenix, Az

    Hey Michelle, welcome and thank you for the great intro!
    You certainly got it early but I'm sorry it's still mucking you about. Pred is a difficult thing - both a blessing and a curse and can take...
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    Re: Flu shot or not during COVID 19?

    I've been getting my shot every year since my 2003 diagnosis. I'll continue to do so. Would recommend it to everyone.
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    Re: Introducing myself

    Hey Gram!
    Thanks for joining. You're right - she will feel a heap better after the surgery. It's a shame it can't just be done once and that's that. I hope she's not feeling too poorly. Good that...
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    Re: Recent diagnosis and new to site

    Hi Lisa
    Welcome to the club :) And what a rubbish time to get diagnosed too! I think the docs took the easy way out when they called it Covid. I wonder how often that happens. Seems like you got a...
  20. Thread: Site statistics

    by andrew
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    Site statistics

    Some may find these numbers interesting.

    These are the stats for unique visits over the last month. This is how many times the site has been accessed.

    2663

    From those visits, a total of...
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    Re: Coping with stress on current pandemic

    Yep it's the isolation that is the kicker to this. Fine when you have a family around you (well..maybe hahahaha) but not so fine when you're locked down for a reason you don't understand to protect...
  22. Thread: Feedback needed

    by andrew
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    Re: Feedback needed

    It's a pleasure :)



    Thanks for that, yes the default setup is a bit confusing. I'm working on making it more obvious - like displaying the actual forums/topics on the front page. This will make...
  23. Thread: Feedback needed

    by andrew
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    Re: Feedback needed

    All good Alysia, at the point when we go to the new version you will just be able to log in as you did before. Same username and password so no need to have to remember anything.
  24. Thread: Feedback needed

    by andrew
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    Re: Feedback needed

    Thanks Annekat. The forum has grown and become so valuable because of the community that's developed through people like you and me and everyone else that are looking for help and willing to provide...
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    Re: An interesting twist...

    Wow - plot twist indeed. I've never heard of Henoch-Schönlein purpura. Google tells me it's treated with steroids so at least you've been on the right course of treatment :) I also see that it's...
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