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  1. Thread: Help

    by brokenangel
    Replies
    8
    Views
    1,293

    Re: Help

    I tried contacting the company directly but they haven't replied. Tried the Pradhan mntri Yojna but its for below poverty line card holders.
    N andrew sir dont worry no blames to you or any one for...
  2. Replies
    7
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    2,407

    Re: Anyone in Atlanta?

    Help
    Hi guys im Neha from India. Im a wegeners pt last 13 years. Recently had a flare in throat. Unable to speak eat n drink fr last 20 days due to severe ulcers n severe pain. Got hospital n spent...
  3. Replies
    8
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    647

    Re: Rituxan is my new friend

    Help
    Hi guys im Neha from India. Im a wegeners pt last 13 years. Recently had a flare in throat. Unable to speak eat n drink fr last 20 days due to severe ulcers n severe pain. Got hospital n spent...
  4. Thread: Help

    by brokenangel
    Replies
    8
    Views
    1,293

    Re: Help

    Thanx Alyssa fr d link...however its gonna be of no use to me since im based in India and the company is in united states. They offer support only to people in respcive countries. Im in dire need of...
  5. Thread: Help

    by brokenangel
    Replies
    8
    Views
    1,293

    Help

    Hi guys im Neha from India. Im a wegeners pt last 13 years. Recently had a flare in throat. Unable to speak eat n drink fr last 20 days due to severe ulcers n severe pain. Got hospital n spent 2...
  6. Replies
    13
    Views
    635

    Thnx anne...but hw do I post it in my thread...

    Thnx anne...but hw do I post it in my thread here..
  7. Replies
    13
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    635

    Hi guys...on d blog afyr a lonng tym. .I really...

    Hi guys...on d blog afyr a lonng tym. .I really need ur help n support guys. ..in feb ds yr I ws hosp in icu fr 105.6 feverbof unknown origin...nw agn last mnth I gt admit..my ophtgal ref me to a...
  8. Thread: helooooo

    by brokenangel
    Replies
    100
    Views
    7,967

    Anne..I was at a stage whr drs hd lost all...

    Anne..I was at a stage whr drs hd lost all hopes...hd dn plasmapheress on me..I hd lung collapse n ws on venti..hd multi orgn failure..hd three cardiac arrest cz of all compkctnd....iv cm a lonnng...
  9. Thread: helooooo

    by brokenangel
    Replies
    100
    Views
    7,967

    D scleritis keratitis iritis n cataract in d eye...

    D scleritis keratitis iritis n cataract in d eye is due to wegs steroids dt m on fr it...n nw steroids are causng syd effcts..
  10. Thread: helooooo

    by brokenangel
    Replies
    100
    Views
    7,967

    True...but I feel sad fr d fact dt my patients cn...

    True...but I feel sad fr d fact dt my patients cn gt bettr wth my trtmnt but der seems ti b nothn dt cn cure my suffrng n pain..I feel soooo helpless
  11. Thread: helooooo

    by brokenangel
    Replies
    100
    Views
    7,967

    Guys...m a physiotherapist by professn n hd bn...

    Guys...m a physiotherapist by professn n hd bn practcn really well al dz tym...it felt gud treating patients but at d sam tym I somehow felt dt m abl to alleviate my patnts suffrng but wat boud my...
  12. Thread: helooooo

    by brokenangel
    Replies
    100
    Views
    7,967

    Thanks a lot annekat...I really wish n pray I...

    Thanks a lot annekat...I really wish n pray I find somon who wd love me fr d person I am n accept me wd wegs
  13. Thread: helooooo

    by brokenangel
    Replies
    100
    Views
    7,967

    Thnx dear...such wrds of courge boost up morale...

    Thnx dear...such wrds of courge boost up morale to sm xtnt
  14. Thread: helooooo

    by brokenangel
    Replies
    100
    Views
    7,967

    I am indeed super frustrated now guys..I cnt hv...

    I am indeed super frustrated now guys..I cnt hv albd meds nymore n sometimes feel it wd hv bn much betr hd I nt bn bk....I was bombrdd wd 7 antibiotics 21 bottles each. And 30 bottles of...
  15. Thread: helooooo

    by brokenangel
    Replies
    100
    Views
    7,967

    Hii friends. ..bk to ds group aftr a lonnng...

    Hii friends. ..bk to ds group aftr a lonnng tym...was hospitlsd last month fr very high fever 105.6 n lo bp 80 / 52. Was in icu n agn a near death experience. ..agn was lonely wd jys mom by my...
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    1,459

    Aftr a lonnnng tym here...was going thru a bad...

    Aftr a lonnnng tym here...was going thru a bad phase. ..a near death experience all ovr agn...was hosptlsd last mnth wd fever of unknown origin. .105.6 n lo bp 80 / 52
  17. Replies
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    1,459

    Hello guys

    Hello guys
  18. Replies
    14
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    1,809

    Hi guys..m dr neha here frn india..I was...

    Hi guys..m dr neha here frn india..I was diagnosed with wegeners back in 2006. ..nyc to see such nyc ppl out here
  19. Thread: helooooo

    by brokenangel
    Replies
    100
    Views
    7,967

    hello guys,,,m back on group after a veryyyyy...

    hello guys,,,m back on group after a veryyyyy long time..hospitalisation was realy very tough for me but somhow back out of it...now my nephron insists on taking rituximab for my worsening...
  20. Thread: helooooo

    by brokenangel
    Replies
    100
    Views
    7,967

    Hi frenzies. ....I m bk home now aftr a really...

    Hi frenzies. ....I m bk home now aftr a really long ling struggle...I tel u I realy missd d home made food n yummy dishes md by my mom....nw m at cmfrt....bt smhw m still unwel despit all d workup n...
  21. Thread: helooooo

    by brokenangel
    Replies
    100
    Views
    7,967

    Hi frnds....m still hospitalised...feeling...

    Hi frnds....m still hospitalised...feeling alon..ofcrs few of my frnds tyrnd up to meet bt m feeling hurt insyd dt despite leavi msgs thru his frnds so dat he cms to kno dt m hosptldsd n missing...
  22. Thread: helooooo

    by brokenangel
    Replies
    100
    Views
    7,967

    Hi guys...bak on d blog aftr long tym...bt had to...

    Hi guys...bak on d blog aftr long tym...bt had to write on ds...iv been hospitalised for the last one week.was sufferng frm very high fever n fatigye....d fever wd come on wid chills..initualy it was...
  23. Thread: helooooo

    by brokenangel
    Replies
    100
    Views
    7,967

    hi frienz..ul hav no idea as to wat kind of...

    hi frienz..ul hav no idea as to wat kind of emotional support ul give me wen m down n wid utmost desires of suiciding or ending myslf.as i said i was to go to d psychiatrist d oder day..i did go n d...
  24. Thread: helooooo

    by brokenangel
    Replies
    100
    Views
    7,967

    yes i kno bt den i dunno smhw its all affecting...

    yes i kno bt den i dunno smhw its all affecting me insyd n killing me each day...i feel so bad n hurt insyd wen i recollect al d thngs he said to me..wen i put in my heart n soul for him n d relation...
  25. Replies
    21
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    1,504

    hats off to u....ur a bravo....my hugs n wishes...

    hats off to u....ur a bravo....my hugs n wishes to u///..
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