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Type: Posts; User: elephant

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  1. Replies
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    That would be wonderful, tired of the prednisone...

    That would be wonderful, tired of the prednisone :thumbup:
  2. So glad you are staying on top of this, hope you...

    So glad you are staying on top of this, hope you can get the rituxan.
  3. I went through the same thing, all the unknowns...

    I went through the same thing, all the unknowns can be so overwhelming. Hoping the medicine works soon. One day at a time. It's a tough disease but us weggies are tough��
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    Hope the tissue match goes well. Keep us updated!

    Hope the tissue match goes well. Keep us updated!
  5. Thread: Jack

    by elephant
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    I sure miss him, he was a wis man and there for...

    I sure miss him, he was a wis man and there for everyone. Thanks Dee !
  6. Thread: Anemia

    by elephant
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    Hope they find out why your HGB is dropping. Is...

    Hope they find out why your HGB is dropping. Is this your first rituximab? The only time I became anemic is when my kidneys were failing.
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    Christrd, I know what you are going through! I...

    Christrd, I know what you are going through! I was at stage 3 and eventually ended up with kidney transplant. Your bilateral foot pain needs to be controlled and kidney failure has many symptoms:...
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    You have a great rheumatologist and she will give...

    You have a great rheumatologist and she will give you the right treatment.
  9. Replies
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    So glad you came on this site to share your...

    So glad you came on this site to share your story. I'm looking forward that you get the medicine soon. Glad she ordered labs and ct scan. Hang in there!!
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    Sticky: Your rheumatologist will order labs prior to your...

    Your rheumatologist will order labs prior to your next treatment. This could be wegs vs infection. You can get low grade fevers with wegners flare. The ENT can do a nasal swab and get it cultured to...
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    Alysia, I was around 12 , but my mom told me I...

    Alysia, I was around 12 , but my mom told me I complained of knee pain younger than that. I had pink eye as a kid that just kept coming back . The rheumatologist diagnosed me with rheumatoid...
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    Lisa, hoping you get better soon. It's really...

    Lisa, hoping you get better soon. It's really hard to tell your kids to that your sick and you need to heal. If you don't get better then you can't take care of your children. I just tell my kids I...
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    They gave me cytoxan at the children's hospital...

    They gave me cytoxan at the children's hospital but it was too late it damaged my kidneys already and ended up with a kidney transplant many years later. My diagnosis back then was rheumatoid...
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    This is my second IV rituxan, I had the first one...

    This is my second IV rituxan, I had the first one in June. I was suppose to get another one two weeks after that but there was some issues. I am feeling better and hope to be in remission by...
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    I think there is hesitancy from my rheumatologist...

    I think there is hesitancy from my rheumatologist reducing my prednisone too fast. I had sinus, eye and lung involved in my last flare. Then ended up with sinus surgery in July. Total sinus...
  16. Thread: Hurricanes..

    by elephant
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    836

    I live in South Carolina, we are going to see...

    I live in South Carolina, we are going to see what happens with the hurricane Sunday morning. Right now the hurricane is not heading toward South Carolina.
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    I think the high dose of prednisone is keeping me...

    I think the high dose of prednisone is keeping me energized, so I'm not that fatigue. Plus all the other immunosuppressive drugs I'm taking is knocking the wegners down. I say I am feeling about 75%....
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    I see dr Langford too!

    I see dr Langford too!
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    I had my second infusion of rituxan last week. No...

    I had my second infusion of rituxan last week. No hair loss. After the first one it took a couple of weeks to start to feel better. I am on prednisone 30, cellcept 1500mg and cyclosporine. I started...
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    Sticky: What kind of eye problems were you having?...

    What kind of eye problems were you having? rituxan can cause chest pain, I looked it up. Look at important safety information and indications.
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    Thanks for sharing your story! Glad the medicines...

    Thanks for sharing your story! Glad the medicines are working for you!
  22. Replies
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    Sticky: My recent flare was nonstop coughing, coughing up...

    My recent flare was nonstop coughing, coughing up blood, runny nose, tired, short of breath, tight feeling chest/chest pain and inflamed sinus causing me to have surgery, and bilateral eye pain and...
  23. My recent gpa flare involved eyes, sinus and...

    My recent gpa flare involved eyes, sinus and lungs . My eye got so swollen I could hardly see. Multiple doctors diagnosed me with orbital cellulitis. CT Scan revealed blacked out spenoid sinus...
  24. I have been on and off prednisone most of my...

    I have been on and off prednisone most of my life, recently i was put on prednisone 40 mg since June and still on that along with a bunch of other medicines. All I want to do is eat! i have...
  25. Thread: Cellcept

    by elephant
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    I have been on cellcept since 2009, recently had...

    I have been on cellcept since 2009, recently had a big flare and started prednisone and rituxan. Waiting on my second rituxan treatment.
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